Are doctors cutting back on opioids too much and too quickly?

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  1. Paul

    This has happened to me in the past, where I was taking hydrocodone for many years without a problem, then was cutoff do to them following the CDC guidelines. I know this is a world wide problem, and I do not know how I could handle this if it happens again to me, most probably I will either seek out drug dealers or end my life without seeking help. I say this because this issue is not about my well being far as I can see it, but about control and causing me and my family suffering. I do not prefer death unless that is my best option. The same can be said for the 4000 deaths that you state in your article. One thing I did not see is any statistics on how many of the 4000 can be attributed to getting uncontrolled medications to relieve their severe pain as they were not able to get the proper medication and level from their doctor. I personally would not ever sell my medications as all little that I have is used by me so that I do not suffer from debilitating pain to the point that death is a better choice than life. I have since a small child used (some unfortunately say abused as they think that any use of medication is abuse) so that I am able to breath properly, function normally and much much later not be in severe pain due to back injuries, where doctors say that surgery probably will not help me. I have multiple compressed disks pushing on my spinal cord throughout by back a few in the middle, but mostly lower back. I do not always take medication on a schedule, but when I feel pain and also keep track of how much I have taken. I know if lower parts of my body are hurting where I know there are no injuries that it is time for medication. To me this is not really living but existing by the use of medication. The same can be said for those with diabetes, my asthma, and other chronic conditions. It comes down to existing with the medication or death. When people say that people that do not have cancer should not be using such medications, they are basically saying to me that they prefer that I am dead. However they are unwilling to admit that. I know life on drugs is not a perfect life, but it is life none the less as without them the only choice for me is to die. The pain not accounting for withdrawals is so much that I am unable to breath properly or even walk properly. Then on top of it I am unable to get proper treatment for ADHD that has been with me since my childhood. That again adds more to my inability to function properly. All I can say is that my government is basically saying to me that I am better off dead at this point, as they do not want to let doctors prescribe for me the medications that help me to live a good and enjoyable productive life. All I can really say to this is I am glad to not have children, so I can put an end to asthma in my family tree. Also they will not have to live with student loans they will never be able to afford to pay off as well. Millions upon millions of children born to a father on disability is probably the best thing that could happen to this country, as it is the only way to really slay the dragon.

    • Adele Hedley

      I have been taking opiates for 6 years. I have chronic pain with 6 spinal operations, ileostomy, Crohn’s disease and two small bowel resection.
      I have kept my pain away for 6 years but now that the uk government has realised that almost every doctor has over prescribed to the wrong patients and through this I am suffering. I do not want to be taken of a pain killer that works for me.
      I was written a plan to drop 10% every 6 weeks. But now I’ve moved and joined a new practice I’ve just been told I’m dropping 10% every two weeks
      I will lose my job at this rate as I cannot function. I shake, sweat and can’t concentrate.
      I had an appointment today only to be told I was to join a drugs and alcohol clinic. So now I m being labelled a druggy!!! Apparently it’s for people who misuse drug!! But I don’t misuse them!
      I’ve been told that drug pushers wait in the car park so they can sell to someone who is desperate like me. My doctor has told me that I have to stick to the plan! I asked what would happen if I was suffering badly with pain and withdrawal? He said that they will stick to the plan regardless
      I just don’t know what to do! My partner wants me to join another surgery but will it be like this where ever I go
      I’ve been in tears today! I have been spoken too at work, I can’t cope and I’m in pain. Basically the doctors have washed there hands of people who need strong pain killers.
      Please if there is anyone out there who can advise me I would be so grateful.

      I don’t want to take my own life nor do I want to start of hard street drugs but I’m being pushed in that direction

      • Stacy Armond

        I pray for you my sister, I understand, as I am too suffering from chronic pain as well and I don’t look forward to the bad days at all..
        You can reach me on Facebook messenger please
        @Stacy Y Reed

        • Holly Bell

          I am also a chronic pain patient. What is going on is nothing short of inhumane so I have started a Facebook support group for people who are going through the same thing. I just got it up and running so it is at its infant stage but if you would like to join please look us up. The page is a Voice for those in real pain. If no one is going to listen to one of us, maybe they will listen to all of us. @whydowehavetosuffer

      • anonymous now

        It’s against those who are following the laws. And are in great pain to no fault of their own. UNLIKE those who has a choice but choose to be mean and criminal and take illegal drugs just to get high. Party if you will. Then their evil greed of money to sell drugs. And the stupid people who has a choice to buy or not to buy the drugs. They buy them and then because of selfishness and stupidity they ILLEGALLY take them and overdose. Here is where this injustice really starts.
        The drug dealers and drug abusers are not being punished AT ALL.
        Oh no. It’s all the millions of law abiding proper users who are in unexplainable SUFFERING who are being tortured. And WITHOUT A “REAL” SUBSTITUTE FOR PAIN.

      • Chris

        I feel your pain,and agree with your artiquately written post. I live in Canada,all of us suffering with chronic pain are experiencing almost identical treatment in all aspects. Our government has decided to lump ALL pain med patients in the same bucket as chronic abusers of any walk of life. I.e. anything, food surprisingly is not subjected to any costly investigations like opioid prescriptions. Addiction to food should be a major concern, pediatric diabetes, overtaxing the health care system with diabetes,b.p. meds, cholesteral,etc… Instead we here have a panel of supposed pain specialiasts claim to have all the facts why this severe reduction is “the best for everyone,the devil may care how it has diminished the hour of every day of our functioning as a human,not to mention the phycological functions. Chronic pain should be heard by the sufferers,but these so-called experts are not empathetic,knowledgeable nor in my opinion qualified to make these devastating conclusions and lie to us. Any meetings that c.p.sufferers courageously attend are not allowed to speak!! I am fed up and truly shocked at what a supposed intelligent society has resorted to. I could go on and on,but I am physically and painfully drained. I apologize for any misspelling or not properly researching everything. But the post I read made me feel so hurt,angry,and disappointd in people,especially our government lawmakers that don’t care about the people that put them there. To work for us !!! Lol.

      • Jules

        I went through something similar so you know what I did? Started going to the methadone clinic (doctors also prescribe methadone for pain) have been PAINFREE EVERSINCE It worked for me it might work for you too good luck

    • Wendi

      I’m in the same boat Paul. I was on hydrocodone after an MRI, xray and ct scan in 2015 showed I had spinal stenosis, degenerative disc disease and arthritis. In 2016 I had a lumbar fusion in the lower part of my back. After a long year of telling them I was having terrible pain in my neck and thought it was behind all my migraines and pinched nerves they sent me for more testing and it was discovered my whole neck from top to bottom was herniated or bulging so they did one fusion in December 2017,sent me in june to check the progress only to learn I had another herniated disc and now we’re preparing for another minimally invasive surgery called the DTRAX which will include adding another cage and this will cover my C3-4,4-5,5-6,6-7. Looking forward to having this done already so I can then concentrate on getting into court for a review of my last hearing for disability. I’ve worked all my life and raised a family, never thought I’d be in this position at only 47 but I am.

  2. Vivian

    Addiction patients are very different from chronic pain patients. Just because someone has chronic pain and is on opioid pain medication, does not mean that they have addiction problems. We should not lump addiction and chronic pain patients together.

    • Sharon

      Yes! I so agree. I was put on oxycodone by my family doctor for combination of Lupus fibro and spinal surgery issues. He kept up in the Dells for his own personal agenda and eventually I left him because he was abusing me. A very long story but imagine being stuck with no doctor I found a rheumatologist who was prescribing tonight but would not prescribe those high amounts. But I thank God that he’s so prescribing me and I wish I was off of them. At 62 years old it’s so much harder after being on opiates for over 10 years the pain and withdrawals very rude

      • Stacy Armond

        My dear friend I totally relate to your comment, it really saddens my heart to have read, but only truth in what your dealing with, cause I myself am dealing with body wide pain on a daily basis, and the only way that I gave been able to live comfortably, and maintain functionally is having to go my pain specialist years ago and having being put on oxycodone 30 mg dropped 150 tabs to 15 Mg’s and 90 tabs , at least I was given a breakthrough medication Morphine 30 Mg’s (Extended Release) which i can honestly say I feel was given to me to help keep withdrawals at bay from the cut on my original prescription of oxycodone 30 mg- cut… I agree they are more focused on “the epidemic” only heck we all are, but should we too, the people who neither sell, nor abuse medication have to pay a price and suffer cause of others who have otherwise misused, abused opioids (prescription pain killers) I suffer from Fibromyalgia, which is very painful, sciatica, buldged and herniated disc L4 & L5–, osteoarthritis of the spine, degenerative disc disorder, my muscles and bones are weak, and some days my skin hurts to the very touch…the pain can be unbearable with having suicidal thoughts sometimes- since my meds have been reduced.(cut) in 2011, I had a fibromyalgia attach that was so bad, I was bound to my bed for 6 days straight because the pain was so bad, so bad to the point of made me horribly sick. I also suffer from migraines thanks to my fathers DNA was handed down to me. My mom used to tell me stories of such horrible migraines he used to have lasting days at a time to the point of having chronic nausea and suicidal thoughts ,because nothing would give him relief. He’d cry like a baby. Since my meds have been cut , I’ve experienced withdrawals and i know it due to my meds being cut and my body is trying to regulate itself at a lower dose, I have not been as active, as I was before with my steady pain meds making it able to be more active, I had come far from depression, active with my children /grandchildren and my family. My quality of life had gotten better with a maintained doses that I was getting. Now I feel I am back to scare A– Why should others have to suffer from others not abiding by the rules of “their” contract?? Its just not fair…

        • Sherry

          AMEN STACY, You and I sound EXACTLY the same. My Dr has left it up to me to find a pain specialist. Ive called and called they need referrals WHICH MY DR’S OFFICE here in Michigan Is taking there time getting me in with a pain Dr. Ive had 6 surgeries. My Dr put me on meds due to my debilitating disease But now my Dr has retired and Dr in his place WILL NOT prescribe ANY CONTROLLED SUBSTANCES. MY DR WHO RETIRED WROTE SOME AHEAD & THERE IS ALOT YOUR PHARMACIST CAN DO IF U BEEN AT SAME PHARMACY FOR LONG TIME. I was gonna search for pain clinic in Mid Mi area then go soon as they open and sit. IDK what to do. You and I sound the sane Ive ne er pkayed games of oh I list my meds or stolen etc…I have a incurable debilitating disease WHAT CAN I DO

    • Debra

      I feel the same way about this .My pcp was was told by administration he couldn’t feel any more pain meds .Have gone to pain specialist twice and they wouldn’t feel meds until mri are done.This is going to be about my 8 th MRI in the last 6 years .The same mri that Drd used to prescribe 3 pills a day isn’t good enough for pain medicine today. They are looking more toward injections.Surgery or implanted device to stop pain. I have an mri scheduled in 2weeks until then was told to use Tylenol and ice.

  3. Margaret deMello MSW

    I think doctors are overreacting to the problem of opioid addiction. It is simply unethical to withdraw or withhold necessary pain medication for legitimate illness or injury. Also there is no research on specific medication addiction rates among specific populations, ie osteoarthritis and other chronic care patients, on long acting morphine sulfate for instance.

    Concerning the bio-feedback theory of pain reduction, exercise, cognitive and relaxation exercises only goes so far. In this regard, health care providers and pain specialists may be over emphasizing psychogenic contributing factors. I recently had a ‘tori’ , overgrown bone in my palate, removed. The dental surgeon 4 or 5 prescription Tylenol which wear off in two hours, whereas the pain lasted two weeks. This is really unfair, especially on older patients.

    I have not noticed any addiction risk evaluation from any of my doctors over the years. Perhaps they should get better training in how to assess and treat patients with co-occurring diagnoses. Also, if opioids are not prescribed, then alternative pain medication is needed. There are horrendous side effects to many, many prescription drugs and these continue to be used, particularly psychiatric medications. So, I just think the various medical associations need to re consider their knee jerk reaction to what is predominantly a street drug crises ie fentanyl. About 1400 drug overdoses in Vancouver were illegal drug overdoes.

  4. Richard A Lawhern, Ph.D.

    It is now established beyond any reasonable contradiction that medically managed opioid prescriptions are not a significant sustaining element in the so-called “opioid crisis” in the US or Canada. US CDC data on opioid prescription rates and rates of opioid overdose related deaths in the 50 US States and District of Columbia for 2016 show no cause and effect relationship whatever. Absolute risk of overdose death or drug toxicity among medically managed pain patients is on the order of 0.02% (20 deaths per hundred thousand), comparable to the mortality of blood thinners widely used to prevent stroke and atrial fibrillation. Contributions of medically managed prescriptions are lost in the noise of huge volumes of street drugs, notably illegally manufactured fentanyl.

    Incidence of diagnosis for opioid abuse or extended prescription of opioid pain relievers among post-surgical patients prescribed opioids for pain control is significantly less than 0.6% during follow-up periods averaging 2.5 years. Many of these diagnoses are incorrectly made by doctors who lack training in both addiction and the emergence of chronic pain conditions caused by surgery itself. Fewer than 1% of post surgical patients continue a prescription longer than 13 weeks, and incidence of abuse is only weakly sensitive to doses between 20 and over 120 morphine milligram equivalents per day. Many physicians in pain management also acknowledge that optimal dose rates vary widely between individuals, in a general range of 50 to 1000 MME (yes, ONE THOUSAND). Over 1.6 million older patients in the US are maintained on opioid pain relief, many of them for decades. The US National Institutes on Drug Abuse confirms that opioid abuse or addiction among these patients is vanishingly rare, despite effects of drug tolerance.

    The only ways in which prescription opioids play a part in our public health issue on addiction is in initial exposures of people who never saw a doctor, by diversion: theft from home medicine closets or being passed along by a relative. Even in this role, addiction is not sustained by prescription drugs diverted at home. Addiction is created and sustained by purchases of less regulated drugs in street markets, not by doctor prescriptions. And the driving factors in addiction are almost entirely socio-economic, not medical exposure.

    Physicians wishing to explore truth rather than hype and nonsense may begin with several white papers mounted by the
    Alliance for the Treatment of Intractable Pain. We’re easily found in a google search.

    Restrictions on prescribed opioids and coerced tapering of existing therapies to below therapeutic levels are literally disabling and killing patients. Hospitals are experiencing shortages of opioids vitally needed in surgery. And all the while, overdose deaths from illegal fentanyl, heroin, diverted methadone and morphine continue to skyrocket.

    • Tim Mason

      I find the cutbacks to be true when patients have been with a certain provider (Pain Specialist) for an extended period of time. Also, when the patient fails to try physical therapy and massage as complementary treatments. A patient should also submit MR, CT images to verify a cause of the pain.
      A person that advocates for himself or herself should shop for alternative physicians before the doctor relationship sours. This type of doctor shopping is not to be confused with the DEA definition of “doctor shopping”. In some states the pain physician turns the patient over to a what is called “physician extenders” which can vary from a PA, NP, NP-C etc. These individuals are usually 30 years old or younger and have only weekend courses to instruct them in pain management.
      I recently had a relationship go sour because I had not seen the MD in 8 months and infact found it difficult to see him. Even upon submission of new imaging that indicated a worsening condition the NP weighed in and continued to try and sell me on a spinal cord stimulator, 5 different models in all.
      I advocated for myself and made an appointment with a physician associated with a major university with a medical school.
      I was then referred to their pain management department which included a well educated staff in spinal conditions and pain. We discussed the “Guidelines” which they knew were not based on scientific data. Furthermore, some doctors do what is best for themselves and their practice and not in the best interest of the patient.
      Document everything and keep files. If you can get to a university setting with a neurosurgeon and be referred to a good pain management practice.
      Where I am now-All visits are provided by a doctor-no physician extenders.
      It is a journey but keep looking.

    • stephanie

      I enjoyed reading your input on the article about the “opioid crisis”. I myself am a chronic pain patient and have been on opioids for 20+ years with good results. As like everyone, I also suffer from medication cut backs. My question to you is, is it only a recommendation of the CDC to pain doctors that they follow the 90 mg morphine protocol? Is it fair that the CDC put us in a one-size fits all profile?? What if any avenues do we chronic pain patients have now?? Hasn’t the “opioid crisis” been going on since President Nixon was in office?

      • Edna Krebs

        The opioid crisis started with president Kennedy. I has been proven he was on painkillers fo his back & he was high most of the time up to his death. My problem is is there a real opioid crisis as bad as they are letting on. Also does the government get a $$ portion of $$ for ever patient that goes to a pain clinic.
        This is going to force people in severe chronic pain to seek out the local drug dealer or commit suicide.
        I have an extremely bad case of TMJ. 23 surgery’s later total joint replacement on both joint, I am in more pain. The joint replacement for my L side was forged badly has small stress fractures & has little pits (holes) in it. Surgeon said he moved & removed the 3 nervers in the L joint. He never did & they are being pinched when I eat, sneeze & cough. My pain level is between 8-10 & somedays it’s 12-15.
        Indiana has 2 very big & powerful pharmaceutical companies. They dictated that kratom was harmful. So it was band. I use to take kratom for pain & it had me out of pain.
        I feel this is about $$$ than anything else. I guess alcohol will be next. People get addicted to it & more die from alcohol every year. So where is that band?
        The DEA are playing doctor without a medical license. When there is a higher rate of suicide amoung chronic pain patients they will change their rules.
        If they think the drug dealers will be hurt by all of this they are dead wrong. They will just get their drugs from another outside source.
        I wish & pray that everyone has a pain free day. God bless.

        • Jenifer

          Just because someone is taking opiate medications for chronic back pain does not mean they are high. Here you complain about not getting the medication but then call someone else who used opiates a drug addict (since addicts only use of the drug is to get high) Well what makes you different then Kennedy when you use opiate medications. My point is you should not be calling other chronic pain patients who take opiate prescribed by there doctor and have a legitimate need for them. Just like it is not up to me to decide you should get medication based on your health (that should be between you are your doctor) you should respect the same for other. This country has had drug problems since it became a country. Those who know more history of drugs that this country goes in sports with drug abuse. For example we had the opiate act in the late 1800’s which basically outlawed Heroin. In the early 1900’s they started to crack down with Morphine being used in over the counter cough syrup that tons of people were addicted to. Then you had the 1950’s where many middle class and above White women got addicted Benzo’s and barbiturates ( those little blue pills that calm you). Then in the 1960’s and early 1970’s the new evil drug was marijuana and LSD. The 1980’s have us crack and cocaine. The 1990’s have us meth and today all those drugs are abused but street Fentanyl is a new ball park because it takes such a small amount to kills you. Unfortunately people are going to do what they are going to do but if we want to change the course of drug addiction you do not center on the drug (since there will always be something out their to abuse which I think our history shows but instead working on education in teaching better ways to cope with stress and for teenagers keeping them active in productive things that came also help with stress. Corporations can help by doing things like giving bonuses for employees who participate in touch yoga classes or have a gym in the building ect. We need a better sense of community so people feel like they have a place in this world. People abuse drugs usually because they are overwhelmed and drugs calm those feeling of with kids it is usually based on what their friends are trying. This is way over what I meant to write and only the first part is for the person I replied to but our government has been playing this wack-a-mole game for decades and the only thing that is different today is the drugs are more deadly. One thing people do not seem to understand is that is if you do the same thing all the time then things will be the same. If you want a change you need to change how you do things. Well attacking chronic pain patients is new but it is making things worse not better for anyone.

  5. Jeff

    I was just assessed as having zero risk of opiate abuse and was taking twice my current dose back in 2001 by the same doctor who is now wanting to cut my prescription to force me to comply to these idiotic CDC guidelines what are based on false premises as expounded most diligently by this author. Thank you for helping us in this fight, but please get this article to the mainstream media. All we get is bad press from the overdose of drug addicts trying to get stoned and since the government is impotent at solving the actual problem, to score points with voters in a tight election everyone screams “do something” and so this is the knee jerk reaction to cut those with chronic pain, the most helpless members of society who are like me with multiple end stage diseases that are incurable, untreatable, degenerative, and only going to get worse with time as we continue to age. Yes we’d all love an equal or better non-opiate pain reliever but until such medication is through clinical trials, FDA approved, and made available on a comparable cost so our insurance will pay for said medicine, leave us alone! Haven’t we already suffered enough thanks to inherited diseases and auto accidents that were NOT OUR FAULTs! For heavens sake, I can go buy cigarettes at the convenience store that kill a hundred times more people every year, with no known health benefits, and without a prescription, a monthly visit to the pain doctor, a drug screen, and a psych evaluation to confirm I am 100% complaint with my prescriptions. I have permanent spinal cord damage, all my joints in my lower body are worn out from generalized (systemic) osteoarthritis, I have had a dozen major surgeries including joint replacement, spine surgery, ankle surgery, knee surgery, and I can’t even count steroid injections, blocks, and 200 physical therapy appointments, yet there is no cure, no treatment, no solution to end my pain and I’m OK with that as long as I am given the life, liberty, and pursuit of happiness guaranteed to me as US Constitutional rights to medical treatment as determined by my physician without government interference based on some biased, poorly researched, and illogical CDC study that even the authors admitted should not have been used for the purposes that our political system and now medical system have adopted as gospel even though over 150 years of experiences with opiates and every major medical textbook scream otherwise. Someone help us before the suicide rates from tortured pain patients makes the death rates from legit pain patient overdoses seem insignificant!

    • Alisa

      Very well said! We are compliant to three point of rediculousness, yet made to suffer thanks to fake numbers and addicts putting us in a bad light. I’m a 25 yr chronic pain patient, with 23 surgeries under my belt. My doctor referred me to pain management 18 months ago, yet no practice would touch me. They said, “We can’t help you.” I figured out that the main cause was that I’m over 90 MME. In addition, the PM docs in my area only want procedure patients, as they make them a quick buck and have fast turn around times (90 days or less from 1st to last appt.) I feel like a prisoner to the system, as I can’t leave the area for long thanks to pill counts and monthly Dr visits. Something needs to change.

      • David Cole

        That’s exactly what I’ve experienced, they don’t want opioid maintained people, they want you to get spinal stimulators, spinal blocks, or some other stupid crap that don’t work and leads to more pain, disability, stress, anxiety depression, etc. Then we have the CDC coming out and admitting they over counted RX opioid prescription desk by 50%, their researchers think it’s much higher because they didn’t count all the other drugs people were taking. Considering less than 1% of people who take opioid pain medication have any problem with addiction, and when it comes to intractable/chronic pain patients it’s virtually non-existent. This whole fake RX opiate crisis is a pathetic display of ignorance.

    • Jane Bond

      Well said. I wanted to tell U about fat cells being altered naturally & turned into netural stem cells which can be used to repain any part of the body. It is new. Started in Wales I think. Of course right now it is new,expensive & of course not FDA approved. I am also waiting for a TB vaccine to become FDA approved to help fix,cure or remove FM disorders. I am hoping it will work. I did the nre for blood to confirm I have FM. Hope this information is helpful. Do hang in. I am cut off all pain meds now even though I have FM,OA & a broken back + other disorders causing pain.. I am hanging in no matter what. Thanks for sharing.

  6. Tess

    This article has some points agree with like the decision to taper or cut should be up to patient and not forced. But there is some info that is not correct.Like that long term pain meds can built a tolerance.Everyone can build a tolerance to any med even insulin. And people with intractable pain may need more due to pain or they could be fast metabolisors.All of us have different shapes and sizes and metabolize meds differently. Most people with intractable pain have tried nonopitiate treatments first and many times those treatments have made us worst.Prescribing of opiate meds has been going down for the last 10yrs in America. So when policy makers ,doctors say people are overdosing from prescribed meds is wrong.The numbers or data was wrong and the people that overdosed had multiple drugs in their system and some illegal mix in too.

  7. John G Nee

    My own doctor retired at the end of March 2018. This is a very large practice that has offices and diagnostic offices all over Massachusetts USA. I was in between doctors and had finished the last prescription from the doctor who retired 6 days before I was seen by the new doctor. They took a urine test and I got a telephone call from some militant nurse telling me that my levels of opioids in my system will well below what they should be if I was taking my pain medication as I should have been taking it. My response to that was there was a 6-day period where I had no medication. Their response was well there still should have been some in your system. My response was no there shouldn’t it goes out of your system in 2 or 3 days. And then they’re telling me I came up with Vicodin in my system and Vicodin had been prescribed to me because all of my teeth have been pulled in August of 2017 in that 6 day. When I had no pain medication and I had three quarters of a bottle of Vicodin left I took some of the Vicodin. I then went in for the appointment with the new doctor taking over for my old doctor and signed a pain contract now as far as my lawyer is concerned a contract is not officially viable until it has been signed by both parties so I could have done anything I wanted to during that 60. And they had nothing to say about it meaning the doctor’s office. Although I did not take anything that was not prescribed to me I was kicked out of the practice without any pain medication and I was on 10 10 mg oxycodone per day and 330 mg morphine’s per day because there was something wrong with every level of my spine I have 30% of a stomach left and they’re my old doctor described me as a person who has the injuries and illnesses of 11 men. And my new daughter just cut me off. No weaning nothing and I have to try and find another primary care physician when this particular group of Physicians owns about 3/4 of the state of Massachusetts and in all the areas that I live in it’s all his practice and his people I don’t know what I’m supposed to do I’m in so much pain and withdrawal but it’s driving me crazy. My wife is going to complain to the board of registration in medicine and anybody else that we can complain to. As my husband says walk a mile in my shoes for one day and you will feel the constant pain that I am in every single day because every bit of my back is broken I have arachnoiditis down the bottom from a failed back surgery. I have fractures in the middle of my back the T8 and another two fractures that they can do nothing about I also have two discs in my neck that are pressing in words towards my spine that could paralyze me if I move the wrong way and this was just diagnosed by this quack of a doctor and he still threw me out of his practice knowing that I could get paralyzed if I turn the wrong way. I also only have 30% of my stomach left because in 2014 I had a 10-hour surgery where they remove 70% of my stomach due to ulceration they removed about 4 feet of my intestines do to ulcerative colitis and then it took them another 6 hours to repair the intestines as they were and it took to surgeon sewing them up I have all of these records. I also have a tarsal Coalition in my left ankle and my left ankle doesn’t move at all it does is swell I’ve also lost two fingers on my left hand due to sore injuries that I have to I have to have surgery for every couple of years so that we can keep the fingers intact and keep the scar tissue around them down. After a wonderful 10-year relationship with my old primary care physician who was wonderful and diagnosing all of these issues and problems I get sent to this Quack and it’s in his former practice and he throws me out the door because he doesn’t want to give me pain medication after 1 meeting. He didn’t even look at my records I had to have my wife come with me to explain everything that was wrong with me and you know he’s questioning me about things that from 2011 the arachnoiditis that came up in the pictures I sent and my wife said yeah that’s been coming up in the MRI since 1999. And I also told him that I was aware of all of the problems out there that doctors were facing in order to prescribe narcotic medications and I voluntarily said you can start weaning me back so that we can get myself down to just a few medications a day but I don’t know when when my urine didn’t show with all of the pain medications I was supposed to be on even though there was a 6-day gap between doctors and prescriptions and I came up with a Vicodin that was prescribed to me by another doctor they did not even want to hear the explanation they just threw me out the door he didn’t even want to see me. So now what am I supposed to do kill myself because of the chronic pain like that other guy 53 years old put a gun to his head and shot himself cuz he couldn’t stand it anymore cuz he took his opioids away from him that’s what this is coming to is awful and it’s horrible and you doctors and and whoever is overseeing the doctors on this need to come to some kind of a consensus or the needs to be a law passed that you can’t just throw somebody out the door they have to be weaned off of these medications before they can be thrown out the door I am very very angry at this and yes I’m going to be running a lot of letters but what good is that going to do for me when the when the doctors can do whatever the hell they want. Thank you for listening. John G. Nee, Brockton, ma USA

    • Mary Meaden

      I hear you John and I think that’s some lawyers should start a class action lawsuit against these doctors who I just throwing people out the door without any kind of weaning I think of that poor man 53 years old killed himself and his widow should be the first one to go to a lawyer about this. We need class action lawsuit started in every single state in the USA and in Canada if we have to we all need to come together to get this thing done this is absolutely ridiculous what they’re doing to people in pain.

    • Joy McQuade

      I have a lot of problems as well but I am going to cut this short. I said the hell with it so I wrote to the first lady. Hey it may not do anything but I figure it can’t hurt . They say there is power in numbers. I’m just saying. thanks Joy

  8. Jackie

    I have been taking oxygen since I’m 18. I’m now 45 and have never abused my meds. I think what Trump is doing to us poor low quality of life disabled patients is dead wrong. I have never once took a double dose, . I have spinal Stenosis, fibromyalgia, brain tumor, titanium plates screws and rods making my foot up as a result of falling off a roof, I have herniated, bulging and siac compression as well Wich with all these ailments gives me not one bit of any kind of a quality life. I’m still in pain even when I take my medicine. My Dr just advised me that he’s cutting Everyones prescription down 12% a month. Wvwn my father who was a Vietnam War Verteran who is 100 % disabled is being cut too. What about the people who have cancer? This is an absolutely shame and I would like to know who to get in touch with regarding this matter. If I’m cut off my pain pills,I’d rather be dead too so take that into consideration because many people will be committing suicide because they just can’t bare the pain their in. Trump changed as soon as he took Presidency. I wish I didn’t vote for him. If he had any pain he would understand what us people are saying but being that he doesn’t experience pain at all he’s thoughtless about the people who need it to have a somewhat kind of life. Wvwn with pain pills they don’t take all pain away. My life is useless without them. What about thoae of us that need them to function daily? Nobody cares. The Drs are too afraid they’re gonna lose their license so they treat us like rats in a cage. We’ve gotten sick from the cut down,and fully back in just as much pain as we were before taking them. If you abuse them yes by all means cut the patients off. But if the patient never had a problem, leave well enough alone! Why? What kind of life am I going to have aoon? Nothing but pain and suicidal from the pain so it’s a no win situation and watch Patient should be treated as an individual and only the Dr knows who’s abusing the pills. That’s all. My rant is over. If I get dropped another 12% I fear the pain I’ll be in will be enough for me to commit suicide. I don’t want to live with absolutely no quality of life and I will not live in this pain I experience on a daily basis.

    • Jackie

      Jackie June 17th, 2018 at 8:29 am
      I DID NOT MEAN OXYGEN! SPELL check IS BAd! I meant OXYCODONE 30mgs 4X daily.

    • Dennis

      With this new law in effect I’m scared that the pain that I am going through they’re going to cut my medication off I do not know what to do

  9. Paula Knight

    I live in the US and the same is happening here. My Morphine was cut from 3 doses of 60 MG to 2 doses a day that was last month and now this month he cut the dose to 2 a day and reduced to 30MG. I am already at the point my back hurts so bad I can barely move and next month no more Morphine. My life will be over if I can’t function. I will either have to find illegal drugs or commit suicide because I refuse to go to a nursing home because I will not be able to live alone anymore.

    • Kenneth Nicklowicz

      Same from michigan, and they did me the exact same way! legitimate pain and never did anything wrong. I wonder who is gonna be held accountable for the death tolls from sucicide or when we go to something illect! THIS IS NOT RIGHT but feel your pain

    • Richard

      I know and that’s nobody should be in that position I get the same way because I’m afraid it’s going to happen to me to again they did it once to me and I was like a pain management but I had to move and now I’m in the state where looks like the same things going to happen and I can’t tolerate it either and it’s not right no I wouldn’t put my pet through that but hang in there cuz I know what it’s like I go through hell to

  10. Joy McQuade

    my original pain Dr .retired just before all this stuff happened. Smart man. So I went to see the Dr that bought his practice.Well that was a nightmare. I was on 360 10mg of methadone a month.I went to see her & it was not good.I ended up leaving there with 120 10mg of methadone. This was in Dec. I spent the whole month in bed. Thank God I had some Xanax,so I made it thru Dec. I am now on 8mg of dulavid 4 times a day. It doesn’t help much. I have diabetis it’s getting worse, I have a fractured pelvis which is inoperable, fibromyalgia, osteoartheitis,spinal stenosis,scoliosis & a few other things.So I don’t know what I am going to do but I am in so much pain & no relief in site. Joy McQuade

  11. Kenneth Nicklowicz

    Someone please help me. I have been on them for years and have been cut off one, and lowered drastically on the other. To the point I am already trying to find a replacement or someone with them because of pain and withdrawl. I have been on them for years to mamage pain that 5 surgeries failed to correct and now this. doesnt make sense being i have never failed a test or did anything to deserve this

  12. Kenneth Nicklowicz

    I went today and yup.. you guess more cuts. I wanted to add i was told that his older patients (60 – 80) arent the ones overdosing and implied that because I am 35 i am likely to overdose based on satistics! what kinda stuff is that? isnt that descrimination by age? I thought as I got older and showed them that I passed every test, and have measure like narcan handy for just incase, and do eveything good communication with the doctors I would be set. Well I am told the DEA is forcing it on the doctor and his hands are tied everyone is getting cut. make matters worse have to go every month when for over 10 years it was once every 3. This kind of thing is bad, but to cut pills despite showing up month after month and not doing anything wrong and getting cut like this is just insane! something needs to be done about this.. I cant fight this pain alone!

  13. Gail

    I have been on pain meds for 20 years after having to give up my children for a year to my mother because my pain was untolorable finally I was prescribed pain medicine and was finally able to get back my family after my kids were grown I decided it would be nice to try and cut back since my life didn’t revolve on a have to do this or that, anyway I requested to be cut and then the unexpected happened I got the opportunity to raise my grandkids and thinking that my doctor would be understanding about my circumstance he would give me back the dose I was able to function at well I was so wrong and had I known this I would have done things differently now I’m raising my grandkids and struggling every day to just meet the basics and bare minium what can I do to get back to functional. My doctor will not help!!

  14. Lynne Welch

    Hi I have been on pain medication on and off for 14yrs I take my medicine correctly no side affects I take morphine 30mg twice a day and I was taking oxycodone 4times a day my doctor cut me back to 3times a day and already my pain has gotten worse in a weeks time I refuse to live like this I was fine taking 4times a day my oxycodone 10/325 now I’m not sleeping not doing as much as I was doing last month I need to stress to my doctor I will need to go back to what I was in before but he’s very strict he goes by the book it took this pain clinic over a year to put me back on my 30mg morphine I have never had a lower dose in my life till I met these doctors 15mg did nothing to help control my pain thank you

    • Joe Vaclavik

      You and I are all in the same boat being punished for others actions and abusing the meds , I bet they don’t cut heart patients meds nor I bet they don’t cut diabetics meds , but they cut our meds because they can’t test for it , I just wish all these people that are in the govt and these doctors could feel the way I do.

  15. Sandra

    I have severe pain,back cyatica,kidney stones,hernia mesh,arthritis in knees,fingers, have been on oxycodone 10/325 my D.O. Said he is scared now because dea coming down on Dr.s!!! Every month he cuts me down,this month will go down from 4x qd as needed for pain to 1 qd as needed! Way to low of a dose&next month nothing!i am scared,!why is dea doing this to people that really need? Need help!afraid of having seizures

  16. Ruth Denton

    So glad I found this I’m in the uk and have been taken of Tapentadol 200 mgs for degenerative disc disease & other spine problems my consultant who was president of pain management in the whole of Europe put me on after the concoction of meds from the GP practise we’re doing nothing apart from turning me into an overweight zombie I was also having regular pain management injections which the government have now scrapped for not working but after doing a lot of digging & research I’ve found they were only stopped for undiagnosed back pain so I’ve been bullied into an eight wk reduction the last four wks have been horrendous he’s told me no matter what I won’t be going back on Tapentadol he agreed to not reduce any of these pain meds until I knew if I could have my injections back then sent me a letter the wk after explaining the reduction with two prescription s attached to the back no support offered they have put me bk on pregablin even tho I went from 8 stone to 13 on these previously which isn’t good for someone with chronic back problems I’ve never once in the time I’ve been on the tapentadol asked for my tablets to be upped to the 400 s or 600 s what I was on worked for me & now I’m in agony left with only a my 50 mg fencino patch which he’s told me is also going …… I didn’t ask to have these degenerative problems I don’t take these opiate s to get high I take them for the daily pain & to function as a normal mum wife & grandma of 52 yrs i am going to see him tommorow to speak to him once again try to get him to see it from my side as a person in constant pain not a drug addict I just want my life back my sleep back i have a chronic pain page I’ve set up on face book I’ll put the link on please join and add your experiences & voices to it we’re not being heard or listened to a lot of info is from America & Canada but it’s happening all over the uk and maybe if enough of us shout we will be heard xxx

  17. Joe Vaclavik

    I have a problem in my upper back that my surgeon doesn’t want to operate on because of a high probability of paralysis in some area, he sent me to pain management and my meds were working until my dosage got cut now what am I suppose to do , hurt an be miserable because junkies abuse the meds I need to live a some what kinda life, it’s so unfair to be caught up in this mess , I’ve always went to my appointments and passed my drug tests that were given now I’m being punished

  18. Cary

    Hello I’m one of the patient it was cut at 6 weeks for my total knee replacement I’m i escrusiating pain can do my therapy good and cant bend my knee because of the pain. My case I have partial knee on october 2017 after 8 months of pain and not taking any medication and no therapy Nd not bending my knee the doctor did a total knee for the pass 10 months my knee is not bending during that time. Now I most need to do therapy but i cant I only stat taking opi when my second surgery doctor cut completed the opio now im going like dont know what to do with my pain I got meloxican gabapartin tylenol aleve motrin dont work for thiz type of surgery please need help. Is not fear we paid for other people who abuse from opio. Thank you cary

  19. Lynn

    I am a chronic pain patient. I have Interstitial Cystitis which causes continuous pelvic pain. Basically, my bladder has holes in it’s protective lining which allows the toxins and irritants that are excreted to attack underlying muscle which causes bladder cramps (resembles childbirth pain in it’s intensity but there is no adorable baby or cessation of the cramping at the end of childbirth) and intense pain. I sincerely tried everything my doctor prescribed but nothing helped my pain until I was given Bentyl (an antispasmodic) and TRAMADOL. I have taken Tramadol 50 mg tablets (1 in the morning and one at night) for the past 16 years. I have never had the dosage increased, EVER!!! Tramadol allows me to work, take care of my aging parents, and enjoy kayaking, hiking, bicycle riding, scuba diving, dancing and other “normal” human being things. I was totally blindsided when my Urologist advised that he would no longer prescribe this drug for me. I was told to “get your primary doctor to prescribe it for you or a Pain Management doctor, I will no longer do it.” Three months later and I have had EVERY pain management doctor in my large city tell me they won’t treat me and my PCP stated she couldn’t either. So that’s It? A human being with a 16-year history of functioning well on a drug that was just added to a Category IV controlled substance and wham! I am now a drug addict? I am dependent on Tramadol, but I am not ADDICTED to it. I have never been arrested (for anything, certainly not for abusing drugs), never prostitutes myself, never sold drugs, stole drugs etc. I was BEYOND miserable before Bentyl and Tramadol and now I have to return to that living hell?

    Seems strange to me that politicians and federal agencies are soooooooo concerned about “overdose drug deaths” and “the opioid crisis” when 480,000 people a year die due to TOBACCO-related use (that’s right, 4 hundred, Eighty thousand) and 80,000 people die every year due to alcohol-related deaths. Furthermore, how many opioid deaths are due to heroin, cocaine, meth, fentanyl? Bet the # of chronic pain patients is miniscule compared to these big numbers!!! Guess the tobacco and alcohol lobbyists and campaign donators get carte blanche to keep on supplying their addicted.

  20. Lynn

    Attention United States chronic pain patients (CPP), their families and loved ones!!!!!! The Food and Drug Administration is requesting comments from CPP’s!!!!! Comments may be mailed or emailed. Do not put Social Security or other confidential information in your comments or email!

    You MUST cite the following information on your submission:
    Docket No. FDA-2018-N-1621 “Patient-focused Drug Development on Chronic Pain; Public Meeting; Request for Comments” Comments must be postmarked on or before September 10, 2018.

    If submitting by regular mail:
    Dockets Management Staff (HFA-305) Food and Drug Administration, 5630 Fishers Lane, Rm 1061, Rockville, MD 20852

    You may also submit by accessing: and follow instructions for submitting comments.

    Again, do not put Social Security numbers, full name, email address or full mailing address in the body of the comment, it will be made public online.

    If you wish to read all of the information, visit “” and the information to put in the search box is”: “Patient-Focused Drug Development on Chronic Pain”

    There were 1,328 people who went to the meeting, please publicize to your fellow CPP’s, families and friends, the laws will not change unless enough American citizens protest this horrendously egregious treatment by politicians looking to brag they have committed to stopping the “Opioid Epidemic” and Federal Agencies wanting to ensure they are not cut or done away.


    • Ellen C.

      I left my comment today Lynn,
      I am 60, have Bern on Fentynil patch for 14 yrs., I was switched over to patch after a previous Dr. I had seen for 2yrs. had me on 6 pills plus Oxycodone 189mcg. Time release pills, I went thru hell to drop the 6 pills and wean my dose to less in 30 days when I was waiting
      to see my current M.D. and have him switch me to the patch.
      Now 14 yrs. later and using 75mcg. Fentynl patches, my Dr. Is going to a hearing, not over me but he is scared and cutting me down to 50mcg. That is less than recommended, I already go thru the beginning of withdrawals every 3rd day, the heat makes me absorb faster in summer. I am really scared. None of this will help me, but I voice will be heard. I wish they had told me what opiates do, In have nerve damage, and memory loss, depression, my life has been a nightmare, I can walk without a lot of pain, but who’s to say non opiate wouldnt have worked? Too late now. God bless and Thank you for the link, Ellen C.

  21. judy lamb

    I was in a car wreck in 03 the seat belt cut my liver into the er doctor told me I could never take otc medicines for me to get a dr. to manage my pain I was crushed up inside the pain dr. started me on 3 oxycodone and I’ve been taking them for 15 years now my dr. cut me to 2 mg oxycodone I tell him I’m in pain before its time to take my second pill he doesn’t listen what can I do I’m a 65 yr. old female

  22. Antonino D'Anna Liberto

    I was taking 180 mg per day after years of taking oxycodone, just got told I’m cut to two 15 mg pills per day , had to detox on my own now in so much pain can’t even get out of bed.that’s crazy

  23. Daniel Rooney

    We need to organize we are many votes only way to fight back , there over 100 million of us ,wake up call your Congress man call them over and over again,get names start a petition to sign on line, all the story are the same here, take names at your doctor office get people to sign up.

  24. Richard Minjares

    actually there’s one thing that I found wrong in here and that’s usually if you meet the pain with an adequate dose of relief it shouldn’t it should take that pain three to seven years to get it pain tolerance to opiates if people are coming back in every couple months that’s an addiction not pain they’re chasing a Euphoria high and doctors got it wrong

  25. Richard Minjares

    Excuse if my Google speak glitches but yeah it’s a travesty of Justice in the laws that they’re even making to cry and combat the problem is just making it worse nobody should be cut off at opiate. Rather you drug addict to begin with OR you become dependent or you get better and especially if you are sick and in pain the doctors must be educated more they’re the ones that cause this mess by not understanding pain and being able to recognize because be able to recognize the two because if you’re put on the pain medication you come back in a week and they said How’s it doing and you said I’m still having a lot of pain and then they up it and you find a dose that works you you shouldn’t need to up the dose for several years and if you’re coming back saying if you a couple of months then the you’re chasing at you for you not a pain eradication. When I’m angry about I have been on MS Contin 30 mg 3 times a day for 12 years I moved from Arkansas to Missouri I’m disabled on Medicaid and then Missouri tonight it’s saying that that was for cancer patients what a laugh well I’m here to tell you my pain is excruciating has nothing to do with cancer infection and thank God I had to take my food money to buy this but I wasn’t going to suffer in cuz I’ve been cut off before and I know it’s like for the pain to come back and I also suffer a lot of sickness and then have severe withdrawal on top of it I almost killed myself but I also think it’s very unfair for Missouri to do that to leave me in that state of Limbo what would I have

  26. Brenda Pierce

    I have been on morphine 60 mg.4 times a day oxycodone 30 mg.4 times a day for 12 yrs. I was reduced last year to 3 times a day same meds later same yr. After 6 months was reduced to 30mg.morphine 2 times a day and 10 mg. Oxycodone 4 times a day I have adjusted but has been very painful now my clinic has closed and have no dr. And no other dr. Will take me I have been on disability for over 10 yrs and have records to show all my medical problems I’m trying to get in to a pain management clinic but they can’t make me a appointment until my records are sent to them the I was going to keeps telling me they have sent them but the pain management clinic has not recieved them this has been going on for 2 weeks please tell me what I can do…

  27. Richelle Bean

    This is happening to me now in USA. I’ve been injured 17 years, severe back injuries. Was given my 1st surgery in February, which hasn’t helped me at this time, 6 months later. California is trying to remove me from ALL opiods & barbiturates at once. I’m not only worried about how sick I may get, but I’m worried i won’t be able to function due to too high of a pain amount. No one seems to be able to help me. Not my Dr. My pharmacy had their schedule 2 lic pulled from them by DA. They go & bother the mom & pop pharmacies & bully them 1st, then go to the bigger chains like Walgreens, CVS, etc. I’m scared at this point. I’m sick. My manic & other issues in my mental health are deteriorating. After finally finding the right combination of medications. I was tried on every non narcotic pill before ever trying the harder ones. They did nothing to help my pain. I’m so disturbed that, as someone who has taken my meds correctly & for over 15 years, (ive even weaned off of oxycontin entirely & lowered #s for roxycodone & norco. Ive lowered my soma amounts without being asked. They still get kicked back to me by the pharmacies, even though my dr prescribes them. I’m being forced off of norco, roxy, valium & soma. I just wish there was something i could do. I know of at least 5 upstanding citizens who are currently seeking heroin to help them out in their pain & being forced off medications they’ve taken for years. People think opiods are scary, wait until everyone switches to illegal, street drugs. Then there will be a newly made epidemic by the same people taking us off these medications, especially when used responsibly. Guess I’ve some long & unpleasant things to go through. I still need more surgeries! This is just too much.

  28. Ward

    I have been on opiate pain medicine for 18 years . My family practioner cut my meds by 80%. He says he HAS to or won’t have a licesnse to practice. My quality of life has deteriorated to the point I don’t care to get out of bed .

  29. James Baldwin

    I never thought I’d use heroin but, now I’m being forced to try it to control my terminal pain issues. Screw the doctors and the government. I’m doing whatever I have to to get relief

  30. Sue

    I have .been on oxy since 2001. Before oxy they tried several pain meds which just made me drowsy.
    In 2001 I had an anterior fusion which they cut my sympathic nerve and took chunk out of it and also the fusion never solidified. After 3 years of injections in my back left me with a tarlov cyst which meant no more injections. I have no sympathy for drug addicts. My insurance pays for my oxycodone-never had a problem with getting med filled. Now more people are worried about addicts than about the benefits of the med for real people in pain. So who do I sue or take my complaint to a higher authority? I am 62 —do dems feel I am going in the internet to get my pain med and at 62 does anybody think I am going to the ghetto for a drug dealer?
    Sympathic for addicts none. This is wrong!

  31. Judith strait

    But didn’t they change the law ,that all doctors have to totally wean off ppl that use them,or get in trouble,thus loose their licenses ? my husbands new VA doctor cut his pills of 5 mil, oxycodne pills to 3 a day from 4 without even ever seeing him.He was very sick for over a week. Now after 1 month cutting them again.5 mil reall? Is he telling us the truth that they have to do this or get in trouble? Is it a new law? Please ! ,! Help me find out the truth???

  32. Holly Bell

    I have nerve damage in my foot that has now affected my tows. My foot is ten degrees hotter then the rest of my body so when it is hot outside it feels like someone is holding a lighter under my foot with no real way to relieve it. I’ve had this for two decades so I have tried every alternative they threw at me including a spinal cord stimulator that they had to remov because the cord was laying on my spine. 8 years ago I was taking OxyContin at pretty high levels so I researched methadone and asked my doctor to put me on methadone to see if I can get off of the high doses of OxyContin. Methadone has no tolerance level so I was quite pleased when I also learned that it was working. Methadone changed my life. I was thriving, I went back to college earned a degree and was on track to get off of disability. Then my doctor told me I no longer had the right to have quality of life because of others who have broken the law, lied to doctors, then overdosed. Now I have been labeled a drug Addict and a throw away. Thankfully I have a doctor who is taking me down slowly. I really didn’t realize how lucky I was after hearing about doctors who have completely cut off chronic pain patients then dropping them as patients with no other alternatives. What ever happened to “First do no harm?” These cowards who are doing this belong in jail because a high percent of their patients have committed suicide.
    Then yesterday I learned that pharmacists now have access to our medical records. If they do not think our diagnosis fits the amount of meds we are on they can override what a doctor has prescribed. Are you kidding me? So now I have no rights for quality of life and I have no rights to patient/doctor confidentiality.
    Methadone clinics for heroine addicts have more rights to methadone then I do. I appreciate you writing this article but your explanation is just as clinical as what my doctor tells me everytime I go in there. I am sorry but I will never understand the complete lack of empathy anyone has for what we are going through. You really want to make a difference, fight for us. Someone please fight for us. I have spent the past eight years building a life I never thought possible. That’s gone now because a room full of doctors and government officials made a decision to no longer care for patients who are truly suffering. The Opioid crisis will be over but we are about to see the biggest heroine epidemic and suicide rate this country has ever seen because they mishandled patients who have never abused their meds or lied to doctors. Who will they blame then?

  33. Cemal cetinkaya

    After taking a over 10 years pain medication The same dose I was hoping to my doctor would increase my dose but my doctor is cutting down my medication since one month I am not knowing what to do I wasn’t taking almost one year no depression medicine I will start back on depression medication and if go buy them on the street they are charging too much money now I am really wondering what is going on long long time ago I wasn’t happy about my life doctors said this is your life you have to cope and This medication is has to be in part of your life it took me a while to get used to it over the years I had really difficult time in my life I don’t know what to do what are the options I don’t want to go back those bad days i was lucky god spare my life now I’m saying to myself god why did you spare my life to go through pain and suffering again I don’t think I can handle this but I will try and getting no where I love my doctor but even the doctor doesn’t know what I am going through I don’t know how to cope this time I am hoping one of this days I get some help from where I don’t know but I just keep praying at least for now
    I don’t know if I wrote this comment where I supposed to but I did it anyway if I did wrong accept my apology thank you
    I just wanted to talk and say something

  34. Jan

    I have had a bad cough for about 3 days if I don’t get it under control I get pleurisy and I will break a rib. That has happened before then I am Off work for a week. I Know what works for me. I went to a after hours clinic. I told the Dr. I needed cough syrup with codeine . The Dr. said no because of the new regulations. I feel I was treated like a drug addict, . I don’t even take pain med. I already am taking cough syrup but is not working and I have been to the Dr. three times this week, fighting another Dr. for a strong Antibiotic, as they tell me I have a virus. I am a mess with a bad sinus Infection for a week and has missed some work. I finally got the antibiotics and am feeling better I just need to get this cough under control so I can lay down at night and get some sleep. why do I have to spend money going to dr. three time as I get sicker and sicker and wont give me what I need.

  35. Julie

    I, too am dealing with the same issue as the above patient. I’ve taken 7.5 mgs of oxycodone, twice a day for 6 years and never had a problem; sometimes taking only once per day. My current physician will no longer prescribe and neither will pain management. They would like for me to take muscle relaxers and anti-inflammatories instead. I’m really not ok with this. I still work full time and muscle relaxers make me too groggy and although the anti inflammatory reduces swelling, the nagging pain is still there. As long as you’re tested and sign a pain medication agreement, I don’t see the problem. What are the people who legitimately need these medications supposed to do? Taking a muscle relaxer on a routine basis I feel is more dangerous in the long run

  36. Virginia Stone

    Treating all humans as abusers of drugs is stupid and allowing us to suffer because of a certain pharmaceutical company is stupid.

    • Mac Bynum

      I agree and if I got out of medication before my next appointment I physically can’t work and it’s causing me to lose money and putting food on my table… I wish I knew how to start a movement and fight this mess

  37. Mac Bynum

    All of a sudden doctors are playing with my life… Living with HIV for 30 years and having degenerative disk … They cut me back and I end up for five days without any medication at all… It’s ruthless it’s ridiculous if somebody feels they have the right to control how I feel…

  38. Constance Montgomery

    I have deteriorating discs and a back and I have lower back fusion. My pain is not going to go away it is forever! What are we supposed to do, I can barely move it as it is I’m on disability I’m in bed 90% of the day. And I find when I go to the doctor or the pharmacy because I don’t look horrible I suppose they kind of stereotype me. You have no idea how much pain I’m in because I’m not screaming ouch at the moment does not mean I am not in pain. We have no choice but to walk to the doctors and we have no choice but to go to the pharmacy other than that I am bedridden and to be honest my husband goes to the pharmacy for me 99% of the time, he is my caretaker. I am 52 years old and I have thought of all thoughts just to get out of pain like I’m sure many other Americans have. What do we do how do we stop crying screaming from the pain it’s not fair it’s just unbelievable. Has anyone for the CDC had deteriorated what chronic pain for life… I am so sure they’re getting their medication somehow if they had because they have money. These two laws are killing Americans or not drug addicts. I have never gone from any of my painkillers ever. There was a point I even suggested they lower my dosage certain pain medication because it was too much and yet I am being cut down so severely. THIS HAS TO STOP …PSIN IS NOT ONE SIZE FITS ALL … AZ ND MINE IS FOREVER…HELP ME. HELP ALL AMERICSNS WHO ARE SUFFERING.

  39. Shawn Jackson

    I had a tooth extraction with bone graft last week, they gave me 10 pills hydrocodone .5 That’s enough for about 2 days because you have to take 2 pills per dose to get ANY relief. I’m still in pain and the doc will not refill, so as a result i have to take 2 Advil and 2 Tylenol and it’s not very effective. This is messed up, who do these lawmakers think they are? I’m sure none of these lawmakers or doctors will have any trouble at all getting their opioids when they need them. It’s time for class action lawsuit against the government over this. My bone graft feels like a vice clamped down on my gum and I need opioid meds, but am treated like a drug seeker addict after paying the dentist big bucks to do 1 hour’s worth of work. I’m so pissed, I can’t imagine what chronic pain sufferers are dealing with right now. What are we gonna do?

  40. Pamela woosley

    I have been on morphine 100 mg for about 5 years and my tolerance to pain medication inside now they’ve cut me first month 1 pill 60 mg month 2 pills 6 mg next month I can’t live in pain what they’re going to push people to end in their lives because of the pain he wants to live in pain and agony same people that overdosed and died pain they should have pain just one day know how it feels is sad one of my to do I’m about to my wits end with it and it’s it’s so sad because the innocent people that’s in pain is the one that’s hurting what are we to do in their life a lot of people that’s what’s going to happen and the doctors are so afraid of losing their license cuz Ithey’re scared and I have multiple problems with my back and nerve damage that nothing can be done for it and I’ll throw itis so it’s like you know I’m not Faking It is documented there still cutting me I need help in Charleston South Carolina but what are you going to do what is the people going to do

  41. Patricia

    I have been on opiots for years do to coronic back pain. My life is limited to what I’m able to do with my meds. I do not over take my meds and the doctor can count my pills to see that I take them as needed. I’m in florida and my pain management dr. has lowered the amount I can take a day. My quality of life at this time is mostly laying down with tears do to my pain. I don’t want to have to buy drugs on the street but what are we suppose to do when I can’t even get in my car to go shopping for food. I know people are selling drugs, over dosing. These people are addicts and need help but why should the people that need there meds to beable to have some kind of life be punished. There has to be another way. I have given back meds to my dr that was to strong for me or I felt high and didn’t want them.Now I was put on opiots that my pain level was to the point that I could at least clean my home taking breaks inbetween. I was still in pain but I could tolerate it. Now that governor scott is taking our meds from us I lay in my bed most of the day and cry. If the dr counts our meds and sees were not abusing the amounr prescribe why do we suffer cause of people that are addicts. I just don’t know what I’m going to do. I’ve been taking my meds for years and now to be taken off, what are we suppose to do. There is going to have more people in jail or dead from trying to get it on thw streets and turning to a drug that is more addicting or something that will kill us. I pray something is done for patients that really need there pain meds and not abusing them. Thankyou for letting me vent. Its awful to have back pain, and pain in other parts of your body and no one cares. Let us suffer. I just don’t get it.

  42. Teresa

    I was cut off of hydromorphone leaving me on hyrdocodone when the pain clinic I’ve been using since 2008 hired a new office manger/doctor whom took one look at me and decided I was selling my meds because I’m on disability what can I do?

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