Emily Foucault

Contributor

Emily Foucault is a Toronto-based patient advisor and rare disease advocate who collaborates with health-care leaders to integrate lived experience into research, education and system change. She currently advises The Centre for Addiction and Mental Health, the University of Toronto’s Department of Family and Community Medicine (DFCM), the Canadian Institute for Health Information (CIHI),and the Canadian Immunocompromised Advocacy Network (CIAN).

You can follow on social media at https://linktr.ee/emilyfoucault, www.emilyfoucault.com or contact her at info@emilyfoucault.com.

5 Contributions
by Emily Foucault

Transparency is not risk free. But neither is restricted access

Patients should not have to file formal requests to understand their own care. They should not have to wait months to read information that already exists. And they should not be excluded from conversations that shape their health and lives.
by Emily Foucault Jess Taylor-Calhoun

The words we use: Why inclusive language in health care is about safety

Inclusive language is a living practice. Let’s treat it that way – with care, intention and the humility to keep learning.
by Emily Foucault

The MCAS care crisis: Canada can’t afford to look away

MCAS patients and taxpayers deserve better. The solutions exist. What’s missing is the political will to treat this like the crisis it already is.
by Emily Foucault

AI offers hope to those suffering from MCAS

The question isn’t whether AI can play a role, it’s whether the global health-care community is willing to invest the necessary resources to unlock its potential.
by Emily Foucault

Along with millions of others, I live with MCAS. There is an urgent need for research and support

"Mast Cell Activation Syndrome (MCAS) is a debilitating and often misunderstood condition. As someone living with MCAS, I have firsthand experience of its profound impact on daily life and the urgent need for greater awareness, research and funding."

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