What do I do if I think my child has a rare genetic disorder?

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  1. Trudy

    The more we can get people talking, the better we will be!! Continue to get the word out!

  2. Sandra Patterson

    Thank you for the tip about keeping track of your child’s symptoms as well as what happens at medical appointments. My sister has a son that she thinks might have a health problem but isn’t sure. I think she should look at other ways of figuring out if he has a genetic disorder.

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