Opinion

What families and caregivers need after cancer caregiving ends

On July 31, 2020, my wife, Emily, took her last breath after a long battle with cancer.

In that moment, the role that had consumed my life for years came to an abrupt end.

For so long, every day had a purpose. There were medications to organize, appointments to attend, meals to prepare and difficult conversations to have. Every decision revolved around helping the person I loved survive another day.

Cancer doesn’t just affect the person who is diagnosed. It changes the lives of everyone who loves them. Caregiving becomes your routine, your identity, your mission. You learn to recognize the smallest changes in their health. You become an advocate, a nurse, a chauffeur, a pharmacist and often the person trying to stay strong for everyone else.

You don’t think much about yourself because all your energy is focused on the person you’re trying to help.

Then, suddenly, there is silence.

People often ask how someone is doing while they’re caring for a loved one with cancer. Meals arrive at the door. Friends check in. Family gathers. Support is visible.

But after the funeral, something changes.

Life of those around you moves forward.

Yours doesn’t.

I discovered that grief isn’t just about losing the person you love. It’s also about losing the life you built around caring for them.

The first morning after Emily passed away is something I’ll never forget. I woke up with the same purpose I had every day before. For a brief moment, my mind automatically went to what she might need.

Then reality returned.

The room was quiet.

There were no medications to organize. No appointments to prepare for. No treatment schedules to follow.

The habits of caregiving don’t disappear overnight. Your heart and your mind continue searching for someone who is no longer there.

What surprised me most wasn’t the sadness.

It was the loneliness.

Not because people stopped caring, but because many simply didn’t know what to say anymore.

For me, grief was only beginning.

As a young widower raising our son alone, I also learned that children grieve differently than adults.

One moment our son would be outside playing as though everything was normal. The next, he would ask a question about his mom that left me searching for words I didn’t have.

Children don’t grieve on a schedule. They move in and out of grief, often when you least expect it. Sometimes they need answers. Sometimes they just need to know it’s OK to miss their parent.

There isn’t a handbook for those conversations.

You simply do your best.

Looking back, there are a few things I wish more people understood about families after cancer caregiving ends.

First, don’t disappear after the funeral.

The weeks and months that follow are often the hardest. Continue calling. Continue visiting. Continue inviting them for coffee, even if they decline. Grief doesn’t end after a few weeks, and neither should our support.

Second, don’t worry about finding the perfect words.

“I’ve been thinking about you.”

“I’m here if you need anything.”

“I haven’t forgotten.”

Those simple sentences matter more than you realize.

Sometimes sitting beside someone in silence is more meaningful than trying to explain away their pain.

Third, remember the children.

Ask how they’re doing. Include them in conversations. Let them share memories of the parent they lost. Say their parent’s name without fear. One caring conversation can remind a child that their loved one won’t be forgotten.

Fourth, understand that grief has no schedule.

There isn’t a point where someone is “over it.” Birthdays, anniversaries, holidays, favourite songs, familiar places, even ordinary moments can bring everything rushing back years later.

That isn’t weakness.

It’s love continuing to exist.

Finally, don’t underestimate the power of simply showing up.

A handwritten card six months later.

A phone call on an anniversary.

An invitation to dinner.

An offer to mow the lawn or shovel the driveway.

Small acts of kindness often become the moments people remember most because they remind us we haven’t been forgotten.

You don’t have to solve someone’s grief.

You only have to remind them they don’t have to carry it alone.

Today, six years after losing Emily, I still miss her every single day.

Life looks different than I imagined it would.

Our son has grown into an incredible young man. Together we’ve faced new challenges, including his diagnosis with Type 1 diabetes.

There have been days when I questioned whether I was strong enough to keep going. But I learned something during those years of caregiving that continues to guide me today.

Showing up isn’t about having all the answers.

It isn’t about always feeling strong.

It’s about choosing, day after day, to take one more step forward, even when your heart feels heavy.

For anyone currently caring for someone with cancer, know that your love matters more than you realize.

And for those whose caregiving has ended, I want you to know this:

The end of caregiving is not the end of your story.

Healing doesn’t mean forgetting.

It means learning how to carry love, loss and hope together as you continue living.

That is what I’ve been learning every day since July 31, 2020.

And it is why I continue to keep showing up.

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2 Comments
  • Gail MacKean says:

    Such a powerful and important piece Wesley. Thank you for taking the time to share your wisdom with us.

  • Loretta van Haarlem says:

    Thank you for your sharing your experience. I recently finished reading A Matter of Death and Life by Irvin D. Yalom and Marilyn Yalom, co-written as she was dying of cancer, chose MAID and describes his life afterward her death. His experience is similar to yours. I highly recommended this book and hope it can be comforting for you. Take care.

Authors

Wesley Lodder

Contributor

Wesley Lodder is the author of Learning to Stay: From Instability to Responsibility. After losing his wife to cancer in 2020, he became a full-time single father while navigating grief, caregiving and raising a son with Type 1 diabetes. He lives in London, Ont.

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