How do patients attain equal status if they’re seen as ‘non-expert’?

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  1. Mike Fraumeni

    Wonderfully stated Francine and I couldn’t agree more and living through something similar to this at the moment in the health care system among some health care professionals. Thank you for writing this piece.

  2. Margaret Fleming

    Like this a lot! Separate but equal is just another imaginary construct.

  3. Nancy Gale

    Francine Buchanan, you are an amazing women. Having worked in acute and community care, I know the health system has much to learn from experts like you. Kathryn Hales and I co-led a patient and family advisory group in community care. Called Share Care Council, we were humbled by the knowledge of our members – we learned so much from them. A new approach moving patients from hospital to home, reduced hospital re-admissions by 52%, reduced hospital stays by one day and improved patient satisfaction significantly. The health experts implemented the system, but it was Share Care Council members – patients and caregivers – who shared their expertise that directly – directly – made such improvements possible.

    “Expert” is defined as a person who has a comprehensive and authoritative knowledge of or skill in a particular area. That’s you. You have unique expertise in the continuity of care for children with complex health issues. To ignore that because there isn’t MD after your name, is to ignore what is best for the patient. “To do no harm” must mean using best available evidence – and you have that to share, every single day. If I had a child with complex care needs, I would want your expertise to help me do the very best for my child and to ensure the medial profession did, as well.
    I look forward it reading your thesis on physician/patient communication when it is published.
    Nancy Gale

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