Chronic pain: do patients get the care and treatment they deserve?

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  1. Hillel M. Finestone

    Great job. Very interesting information that needs to be out there, to stimulate more dialogue about the lack of services for patients who are experiencing chronic or even just beginning pain. Thanks for quoting me. For the record I am “Professor, Division of Physical Medicine and Rehabilitation, Department of Medicine, University of Ottawa”.

    • Vanessa Milne

      Thanks for letting us know – we’ve updated the story to reflect that.

  2. Julie Carl

    What good news that there are workshops for chronic pain. I never knew that and I suspect most people do not. That’s news you can really use.

  3. Dr. Martin Owen

    This is why I have closed my practice to go into chronic pain medicine full time. I would love to see project ECHO or similar come to Alberta. Glad to see my Alma Mater, Queens’, innovating in this area. Keep up the great work.

    • Kathy

      We need More caring doctors such as yourself to care about us suffering Day & Night with chronic pain. Myself I cry and most days can NOT walk in the morning.
      My doctor has now since Quit being a family doctor to work palitive care At the hospital. He has another new dr there for only 6 months.
      I have to find a dr. I am terrified. I have no one , no where to turn.
      Can a new Dr. Deny me because of the meds I am on. ? Even know they also have patients wearing fentanyl patches ??
      Would they be that cruel and would a dr generally not accept anyone on high doses. I am aware I will be brought down. I have to accept that but I should not have to accept lowered WELL below what WILL still hopefully help me.
      Drug abusers have done this. And now we must pay the price. How fair is that. They go to detox or what ever. As we continue to suffer.
      I am so terrified stressed and getting depressed due to worrying if the new dr I am
      To see next month will not accept me.
      Can you help by letting me know what’s going on with patches and pain and the amount of medication is it being told by the government what WERE allowed for pain ? They are NOT Doctors!!! You ppl are. You went to school. Took extra coarses etc. For the government to now DICTATE what dr’s. Can and. And can NOT do or perscribe.

    • Kathy

      Are you in Ontario ?
      In the Collingwood area by any chance ?

    • Kathy

      Are you in the Collingwood area in Ontario by any chance ?

  4. Ellen N Thompson

    The article does not reflect the realities observed thru 35 years in pain management. We do have the skill and knowledge to CURE most cases of back and neck pain with simple means if we provide effective therapies prior to 6 months ( post accident/ injury ). The long wait times quoted ensure the maximum number transition to chronicity. An Ottawa clinical project aiming to triage and treat individuals with spinal pain persisting beyond 8 weeks, but less than 6 months found that interventions such as tr. pt. and paravertebral inj. cured a high percentage of patients. Importantly, initial high levels of psychological distress disappeared as soon as sleep and normal function was restored.

    • Morgan

      Unfortunately that does not work for everyone! For me it was short term relief! It’s not a one size fits all!

  5. Ruth Dubin

    HI Ellen, I agree that the transition from acute to chronic pain can be prevented, and people living with chronic pain can achieve better quality of life and re-engagement in meaningful activities.
    As you know I got my start in chronic pain with a “slipped disc” and years of low back pain. What worked for me was to continue to go to aerobics classes, do my simple stretches and the pain eventually subsided to just a whisper that bothers me only if I sit too long.

    Likely genetics and the lack of severe childhood adversity, plus the financial stability to pay for a gym membership were in my favour.
    Fortunately Ontario is supporting the Chronic Pain Self Management program which we trialed in 2006-7, along with an exercise program at the YMCA which continues to this day.
    Our society is sedentary, with too much junk food (cheaper than vegies and fruit), and no gym class in high schools. A cultural shift has to happen to redress all these harms.
    So it takes more than a village to change our culture…Many hands make light work and a broad public health perspective is a must.

  6. John Crosby

    As an emergency and family doctor for 43 years I have had very few patients develop chronic pain because I treat acute pain very aggresively. I try to keep the patient working and advise physiotherapy and chiropractic and I avoid prescribing narcotics. Instead I recommend tylenol in maximum doses and NSAIDS (non steroidal anti inflammatory drugs) like Aspirin Aleve and Advil. They are non addicting and really work in the right doses.
    Heat, ice, massage and exercise help a lot too.
    Dr. John Crosby, Cambridge.

    • The required name

      This is in no way an answer to this issue. And unfortunately, the approach of many doctors. Non narcotic non narcotic non narcotic is the only catch phrase you know. How about you answer the calls of those who DO need them. There is a world of patients who have not had the same experience, and just because you fail to look in their direction, does not mean they don’t exist/are not suffering daily because of it. Any professional can direct themselves towards the easy work. In your case, you have the “privileged” of dismissing those who you cant cure (in this case) as drug addicts/non compliant, and that is EXACTLY what the problem is. Too many doctors with too much pride, who instead of acknowledging the limitations of our medical system, unload the afflicted as non compliant or of a different affliction, to avoid failure. Its time that the public starts telling you folks exactly what is up. Any person hell bent on finding a solution to their pain (which is many), has already tried all of the above mentioned, and turns to them regularly (even when they know its not the answer). Grow up and do your job , you have in no way addressed the issue we are talking about here. You have segued into a different time and place, which is long passed. That ship has sailed for most, and the medical community has told them “tough sht” (We don’t know how to regulate you the way we want to, so you cant have it), even though we have the technology/pharmacology to address it. Your response is of the likes of MANY that are given in doctors offices around the country, where the patient is essentially ignored after months, years or even decades of unrelenting pain. They have clawed and saved their way to that day, just to have you spit in their face, and push them out with no answer much less relief. While that may just be another appointment to you , it is very often a life altering event for that patient. If you are not up to the challenge, then you should gracefully bow out (and I mean of practice, not of the appointment). Doctors are the last leg of defense that the chronic pain community has, and you are cowering in the false narrative pushed by govenment agencies with a clear agenda. SAVING PEOPLE FROM ADDICTION, WHO WILL HAVE NO LIFE OTHERWISE, IS A POINTLESS ACT.

      • Kristine

        I agree completely. We are ignored, treated on a ‘but you might become an addict’ mentality.

      • Kathy

        Well said.
        Thank you for posting your comment. I am terrified what will happen as they are now weening me down off my meds. To what the Government THINKS is the highest for everyone. No 2 ppl are alike with pAin. Yet these clowns seem to think so. I want to know why our Dr’s who went to school for many years and took an Oath to help the sick. Are cowering in the corner. Even know many agree the smart Doctors do NOT agree. I have never thought about suicide but I think about it almost every day now. If I take my own life due to my chronic pain I pray the truth comes out and not Government lies.
        Loved your post

        • Christine

          No we are not given any respect or help when managing chronic pain. I’m 41 years old. I have rheumatoid arthritis and fibromyalgia. I also have carpal tunnel and nerve entrapment in both my elbows. I have reflex sympathetic dystrophy in the one foot. I’m in constant pain. With pain managed I was able to return to work. I care full time for my parents mom has dementia and dad has mobility issues. My doctor took me off all my pain meds. I used to be on a fentanyl patch with percocets for breakthrough pain. Now nothing but Tylenol and Advil which I max out every day. I’m still is severe pain so much so I vomit from pain. I’m getting max 3 hours of sleep broken up per night. I’ve never abused drugs or alcohol. I don’t even smoke. I’m extremely frustrated. My job is suffering. I’m having trouble taking care of my live in parents. Most of the time I can’t even get my own housework done. I love my job. It’s not full time about 5 hours a day. I’ve asked my doctor twice to go to a pain management clinic and was told no. If there’s a non narcotic way to help me fine let’s do that. I not even given the opportunity. My specialist tells me to have pain meds to go see my family doctor. I’m in agony every day. Taking Tylenol increases the damage to my liver because I’m on methotrexate. I’m at a point of thinking of turning to street drug for relief although it wrong. I just can’t keep living like this. Cortisone injections I’ve had so many that my bones are now brittle. I’ve had 2 fractures. I know I’m not the only one. Some chronic pain patients are contemplating suicide. I’m not at that point nor do I ever want to be. That’s why I’m requesting a visit for pain management. I need help. Why am I being denied. Maybe it’s time to find another doctor. I’ve been labelled as an addict when I’m not I’m extremely cheap on pain meds. I’ve seen what these drugs can do to people. My doctor however sent a referral without my permission to go see a psychiatrist. How is that supposed to help. Yes I’m depressed now because I’m simply not functioning.

      • Rose

        AGREED! Why aren’t all us chronic pain suffers able to start some sort of class action? I mean is it not a violation of our human right to be pain free? The ” non narcotic” medication does not work and destroys your stomach and liver!

        • Kathy Huntley

          Thank you for speaking up for us who suffer with many chronic painS. Not just one. No way will an Eleeve or Tylenol take away my many pains
          I pray a lawyer with balls to take on the government will step u to the plate for us all. I have :
          Fibromyalgia. Osteoarthritis. DDD.
          Chronic Back pain.
          Hep C ( from a tattoo years ago ) which also causes pain
          My Dr. Said no. Hahahaha. I googled it and plan to show him on the 19th.
          IF any Lawyers are reading this please contact me.
          I cannnot and I will NOT live the rest of. My life in pain !

          • Scott Farraway

            Kathy please check out our Facebook page Chronic Pain Treatment Advocates.

        • Kathy Huntley

          Your right about what it does to your stomach & liver.
          I have been talking about a civil or class action law suit.
          I am in. 100%. But we must find A Lawyer with Balls to take on the government. Paid upon winning.
          Contact me and maybe we can get a class action law suit going.

          • Mary

            I totally agree. I’m so relieved to find out I’m not the only one in this world who feels like this. I also suffer from chronic pain and have been ignored by my doctor, I’ve been looking to see if I could find someone who would challenge our government and allow us the human right of life without pain. Plz contact me if you have found or want to find a lawyer with the balls to do this. Thanks!

        • Scott Farraway

          Rose we’re trying to bring people together at our Facebook page Chronic Pain Treatment Advocates.

      • Jan

        AMEN! I agree with you! I have tried all the OTC medications. They are a waste of money. We get lumped into the category of people who abuse their medication and that is totally NOT FAIR!

      • Me

        I have said much of the same to every doctor I meet. I have utilized and continue to use all the non pharmacological treatments and medications discussed and more. Physicians even scoffed at my use of cranial sacral therapy and now they’re suggesting Reiki? Over the counter drugs like Tylenol and Advil and NSAIDS have their own side effects and can cause permanent issues with the liver and GI tract. Suddenly all chronic pain patients are the dregs of society and addicts are getting all the attention. It’s now becoming impossible to find a doctor willing to treat a chronic pain patient never mind getting opiates or narcotics from one. Now it’s a bad childhood or mental disorder to blame for chronic pain. It would be all laughable if it did not mean that so so many people are now forced to manage their pain alone with a bottle of Tylenol and a pack of bandaids. Where is all the evidence for all of this change? Oh wait, there is none. That is the true reason pain management has always been so substandard, not enough is known about it. We are in an awfull lot of trouble when the medical field is believing junk science and social hype. Treat all patients as individuals and not one size fits all and maybe just maybe you will achieve some success.

      • Nonyabusiness

        Good one. They are scared to death, it is entirely political. Contain the illegal trade in narcotics. How are so many available? Out the back door of the pharmacy? I ended up going overseas for an MRI, saw a world class pain specialist & got the correct meds. Eventually those run out & you have to brave some asshole doctor in Canada. You can see the gears whirring – ‘just tell the patient no’. They are losing any respect rapidly. Not just in pain management either, many other fields.

      • Monica

        You are spot on! Pain suffers like my self chronic need advocates like your self and others…. I would like these so called doctors to live with my pain for just a month and tell me how they feel on a daily basis…. we chronic suffers can’t be ignored.

    • William Cowdy

      Thanks for the wonderful recommendations Doc. But how about the poor bastard with post polio, fibromyalgia, arthritis, a non functioning left shoulder, a torn rotator cuff on the right shoulder, herniated and degenerated discs in the neck and lower back, among myriad other complaints. I have all of that and at age 71, no one wants to operate on any of it. I cannot use NSAIDS as they cause bleeding internally, and 1300 mg of Tylenol 3 or 4 times a day is not healthy. But then there is that wonderful physiotherapy or Chiropractic aid which MOST seniors couldn’t afford that you suggest. Take your head out of the sand, and realize that not everyone can afford or access the aid you suggest.

    • James Pookay

      I agree with your recommendation regarding keeping people at work or early return to work.

      At the walk-in clinic, I’m constantly being asked to give people medical leave for extended amounts of time without a clear physical limitation and patients that insist that they can’t return to work in any form.

      When I do grant leave, I find most people don’t actually engage in any active recovery activities or programs (physio, counseling, retraining, etc). They just seem to languish for weeks and months on end, don’t improve, but then show up on the deadline where there leave expires demanding more time off with no new recovery plan.

  7. Heather Divine

    One piece that was not given enough attention is the importance pain self-management. At People in Pain Network, a nonprofit that establishes peer-led, pain self-management support groups, we realize that a person living with pain may see a healthcare provider for 20 minutes a month, and the remaining 43,180 minutes every month are theirs to self-manage their pain.
    Pain impacts the body, mind and spirit and so people need guidance and education to learn to make adjustments to their body, mind, spirit and environment to live well with pain. They need help tp build a new normal. Our groups provide a safe place, with trained peer leaders, so people can share the struggles and just as importantly, learn and share knowledge about solutions and community resources and celebrate successes. Pain self-management is one of the bigger pieces of the multi-discipline approach to managing persistent pain. I have been learning and practicing my own pain self-management skills for over 26 years now so I do understand how important this piece is.

  8. Samantha Fashler

    Great article! It describes important issues in pain management and patient care.

  9. MJ Bailey

    Good article. Yes we need more research but I’d prioritize early treatment programs. It took 18 months for me to see a pain specialist. I was seriously depressed by then and the pain was there to stay, along with sleeplessness and anxiety. I had zero knowledge about what I was going through and how to deal with it other than rest, ice or heat, and stretching exercises which I did faithfully with little relief. Yes, train the GPs. Also, Doctors, stop trying to push patients off opiods and onto marijuana oil just because you’re getting hassled by your oversight organization for writing what they think are too many prescriptions. How about some science there instead of just trying to get the organization off your backs.

    • Scott Farraway

      Hi Derek. Read your response. Please see our Facebook page Chronic Pain Treatment Advocates.


    So we still must just WAIT. WE KNOW ALL OF THIS…it has not changed since the beginning of time . These programs are wastefull and demeaning to anyone involved. To sit and pay someone to tell you how to do things you are already doing, and to coach you on aspects you don’t need coaching in (just in case you might not know) IS NOT HELP! The average response to an idea like this, is that the person is not receptive, or a non compliant. The fact of the matter is, that people need to be given the simple tools to manage themselves. Painkillers are a SIMPLE tool, that play a role in a grand scheme of tools, that YES…have ramifications if not used properly ( just like a power tool , car, stove etc ) Those SIMPLE tools have been taken away, and then we sit there scratching our heads, wondering why this isn’t working. Kill pain, life can continue and the next step sized up…but sooooo many cannot reach that first step and then fail as a result. If the person needs help there after…THEY CAN ASK FOR IT. A majority of the problems that a chronic pain patient is facing HAVE NOTHING TO DO WITH THEM. We are regularly fighting regulations and biased doctors, we regularly must change plans and medications that are working just fine for us. We are told things we find to help do not , and those that don’t, DO…and if we dare challenge the idea, we are dismissed. Most times this dismissal puts us back to the start , where years to decades of progress are smite in an instant. There is a constant disruption of balance in our lives, from outside sources telling us that they are here to help. There will never be a program in the world that will allow for a medical professional to be in control of all these aspects, WHILE STILL MAINTAINING THE FREEDOMS THAT PATIENT HAS A GOD GIVEN RIGHT TO . ANY PERSON WHO HAS HAD THEIR INDEPENDENCE STRIPPED FROM THEM, WILL BE LIVING IN CONSTANT EMOTIONAL CHAOS. THAT DOES NOT MEAN IT IS THE FAULT OF A MEDICATION, CONDITION OR CHOICE. LIVING IN CHRONIC PAIN IS A ROLLER COASTER… A ROLLER COASTER; THAT IS NOT IN ANY WAY ACKNOWLEDGED BY OUR MEDICAL SYSTEM… A ROLLER COASTER; THAT IS IN FACT, USED TO EXTORT THE PATIENT BY PROTOCOL. Just because people decided that they were not comfortable with an idea (largely due to the rumors perpetuated by hungry media companies), we now must surrender every bit of privacy and self meaning to accommodate THEIR feelings and comfort….all for a reason that is NONE OF THEIR BUSINESS. Once the aspect of freedom (and a general respect for human life) is addressed, you will see the progress you are looking for…untill then, forget about it! You are doing nothing but harm…a small amount of medication or health complicating procedure, is in no way vindication of the god like role you have all played in forcing most chronic patients to suffer needlessly. No one wants to live a life with some counselor breathing down their neck every second of it (especially while racked with pain and frustration), nor should they have to . Pain and getting injured is a fact of life , get over IT and YOURSELF. You are taking NORMAL people , and CREATING the monsters you say started this all.

    • Kathy

      And possibly more suicides then drug over doses by drug addicts. NOT chronic pain sufferers such as myself. I am terrified what will happen when they lower me so low that my pain will. Be unbearable. They will also turn many into heroin addicts. Causing even more deaths. Where does it end ???
      Pain ppl or drug addicts.
      So far the chronic pain sufferers are the only LOSERS here !

    • Scott Farraway

      Derek would love to touch base! See our Facebook page Chronic Pain Treatment Advocates.

  11. Elizabeth Rankin

    Patient access to Interdisciplinary Teams is the best way for most patients’ problems. My personal issues with a large L5S1 herniated disc were not resolved “medically” they were resolved with Physiotherapy, Cranio-scaral Therapy and Homeopathy using Arnica & Hypericum. Even though a neurosurgeon informed me I’d only get better with surgery, I persisted with those I knew were helping me. Yes, the medical route provided the CAT scan but otherwise my experience was a dead end. I’d decided I wasn’t going to go the route of powerful prescribed opioids so I made the right decision for me. A year later, knowing I’d successfully recovered using a team approach (none recommended by a doctor) I decided to write the neurosurgeon. I wanted this doctor to know patients shouldn’t be told they’ll never get better without surgery. This letter generated a phone call from the surgeon.

    I think our health care system needs an overhaul beginning with a willingness to incorporate the right team of professionals to help patients work out their single or multi problems. We all know the doctor-patient only scenario has failed to provide the best approach. This articles brings many issues to light. Change is needed if we want to “first help patients.” Doing so will reduce the burden to patients and provide more tax dollars to revamp the system. We need up to date technology for patients and practitioners to “move into 21st. century health care.”
    If this were to happen we could eliminate the many levels of bureaucracy that fund various jurisdictions, or would we?

  12. William Cowdy

    When I can afford to do so I use medical marijuana, as per my prescription. I cannot afford to buy what I am allowed, particularly since tax, and shipping must also paid. I do not believe that either the Feds or the provincial government gives a damn about chronic pain, other than paying lip service to the need to improve distribution of opioids to chronic pain sufferers, while stopping the distribution of same all together. If they did, they would have made medical marijuana easier to access by sufferers, rather than making it almost impossible to find a doctor that will prescribe it. Sound confused, try and find a clinic that will prescribe marijuana without charging hundreds of dollars to the applicants for the privilege of being legal.

    • Scott Farraway

      Totally agree! See our Facebook page Chronic Pain Treatment Advocates. We need to come together and find a way to change this!

  13. Martie Whitaker MA

    Dr. Hanse Clarke, Director of Pain Services at Toronto General Hospital, stated recently in the Toronto Star that fentanyl, an extremely effective medication for chronic pain patients, “should be reserved for the exclusive use of cancer patients”. These kind of irresponsible and silly comments do a great deal of harm to chronic pain patients.

    Martie, 56, has tried just about every pain modality, including an implant4ed pain pump. It wasn’t until she was put on a low dose fentanyl pain patch that she experience significant pain relief. Because of this pain relief, Martie is able to take care of her elderly mother, volunteer as a crisis counsellor (and helps run this program at her church) and to even sing in a performance choir. Without the medication, Martie can do nothing besides lie in bed in agony.

    Martie’s pain patch is only part of her pain management strategy. She also uses exercise, meditation, the services of a trained guide dog and massage therapy when she an afford it

    You should do a better job of checking on your sources. Clarke is a menace to the pain community.

    • Pret

      I fell 28 months ago. Have been told by family doctor, Physio,massage therapyst,pain clinic,(Prolotherapy), back clinic. They can not help. “Do what you can do, take medication). Before fall, walked 8-10 miles a week. Very happily married, great family. Now becoming very depressed, drugs and I do not get along very well. Help please!

    • Scott Farraway

      Martie. Please see our Facebook page Chronic Pain Treatment Advocates.

  14. Robin

    I am a 40 year old woman who has been suffering in chronic pain for six and a half years. I have two amazing children, but sadly I had to give up the vision of the kind of mother I planned to be and instead sit by and watch as they have grown up before me. I am one of the lucky ones who has an inter-disciplinary pain clinic in the community where I live. However, it was over two and a half years before I was referred to the clinic, was almost a year before I was seen by one of their physicians and over five years before I received a CRPS diagnosis. I have attended every kind of education session they have offered, been to counselling, practice regular self care, and still suffer in extreme pain, every minute of every day.
    I am one of the pain patients who is being treated with opioids. I have tried coming off them and the hell of trying to live like that was pure torture. It was not the fact that I felt like I “needed” this medication, it was the fact that I lost all ability to function in my affected limbs. Patient led care in Chronic Pain Management is so important. I am the only one that can say if those opioids are truly helping me or not. How is it right that someone who does not know me, does not know the excruciating pain I endure and will endure for the rest of my life, can come along and say that pain sufferers should not be treated with opioids. I am one of the patients who had tried everything imaginable, spent my family’s entire savings and more, all in an effort to reduce my pain. Unfortunately, I am also one of the ones where everything I tried, failed to make a difference.
    I also pay into MSP, our province’s health care plan. I have never missed a payment, and have never once paid late. However, I have found out that they are no longer willing to pay for one of the nerve blocks I get at my pain clinic. I have been receiving these nerve blocks for the last couple of years and require them every two weeks so that I continue to have functional use of my right arm. We have tried spacing them out further and every time I regress to the point that I cannot even pick up a fork to eat my dinner. But a government official can once again determine what is best for me and forbids to pay my doctor for providing me with an obviously effective treatment. I do not understand how they can do this. Our MSP is not supposed to be an elective health care plan. I desperately need this treatment to function and to be a mother to my children and a wife to my husband. I need this treatment so that I do not question my will to live.
    In summary, I was not effectively diagnosed within a reasonable time frame and therefore did not receive timely treatment that would have possibly lead to a better outcome. I had to wait a significant amount of time to access a multi-disciplinary pain clinic. I finally found a treatment that provided increased function in my daily life, although it needs to repeated bi-weekly, only for my provincial medical system to deny my access to this treatment. I spent my family’s entire savings and more on all types of natural health care and therapy, all for very little benefit. And now, my opioid prescription is being threatened by changing rules on the distribution of narcotics to people in pain.
    I am a human being, a contributing member to society. I did not kill someone in a past life or do anything else that would make me deserve the sentence I have been dealt. I have been sentenced to a life inside a prison of pain. I have to try and hold my head up high under the unsurmountable weight of grief, grief that is caused by all I miss out on and all I have had to give up in life. I have many years ahead of me still, and have to continue on knowing that I will suffer like this with every breath I take. Is it too much to ask to allow me to decide what is right for my health moving forward? Is it too much to ask that you let me tell you what my very own evidence based treatment looks like? What works for me may be very different than what works for the next person with chronic pain, that is why it is essential that those trying to reduce pain ensure that they are actively involving their patient in the ongoing treatment plan.
    We need more patient led care, more evidence based treatments, more chronic pain funding and more access to services and treatments before we will ever make headway on the epidemic of Chronic Pain.

    • Kristine

      Excellent post. No one knows our story, what it is like to be in our shoes.

    • Scott Farraway

      Robin. My wife is experiencing the same thing. It is unbearable. I fear for her life. See our Facebook page Chronic Pain Treatment Advocates.

    • Scott Farraway

      Robin. My wife is experiencing the same thing. See our Facebook page Chronic Pain Treatment Advocates.

  15. Karen

    Our medical care system has me confused and angry. I have lived with chronic pain for twenty years and every time I find medication that works they start to regulate heavily due to street value on these pain medications. I have been on the same meds and strength for years and now have been forced to reduce to a level that does not cover what I need, which cause alot of anxiety and depression and a feeling of worthlessness due to being treated like a street junky.

    • Scott Farraway

      Karen. My wife is experiencing the same. See our Facebook page Chronic Pain Treatment Advocates.

  16. Sheila Erickson

    I’ve been in pain for years I m at the stage where there seems to be no help it’s so frustrating the article is enlightening

  17. Phil

    I have aids there is no cure just a longterm treatment as a result of all the drug trials it has left me with as the neroligist said was the worst case of Aids related phneropathy . Along with getting run Down in parking lot leaving me with a back that doesn’t work and I was on oxycodone it worked now I moved to a different town and thy this kind met hi done is the answer well it don’t help my back the only thing it does is keep me so doped out of it iam sleeping all the time it’s like I have been shelved and am us less in society what a great feal in a wrath less piece of flesh can’t wait this is. US less no one ever pays a tent ion any way I can’t take the pain any more I know what pain people suffed

    • Scott Farraway

      Phil. You’re not alone! See our Facebook page. Chronic Pain Treatment Advocates.

  18. Joanna

    Chronic pain patients have been totally abandoned by heartless politicians who should leave doctors alone to manage their patients as they see fit, and also by selfish, fearful, lying physicians who will not risk their incomes or lifestyles in order to actually help people. It is disgusting.

    • Scott Farraway

      Joanna. I agree! Please see our Facebook page Chronic Pain Treatment Advocates. It’s time to come together and make some noise!

  19. Christine Coletti

    While the need for Education exists for Healthcare Providers, so does the Need to Generate Much MORE resources for patients awaiting spinal surgery – a quick look in google or google scholar, and academic resources comes up VERY THIN on a Patients hand guide to ‘Thrive and Survive’ – while awaiting Spinal Surgery – or even a Specialist Consultation.

    It is so key to have a close relationship with your family MD and your pharmacist, physio, acupuncturist, RMT (Massage). We spend a fortune, end up on disability and then no longer have the funds to try and relieve pain – a vicious cycle. There are lots of topical ointments that can be formulated to help with spinal column direct pain, along with the use of anti-epileptics, or anti-depressants. Titrating (increasing doses) and becoming familiar with each drug you are given is key (being a RN for 31 years gives me a little more education) – but this needs to be part of the comprehensive team care needed.
    There is little out there to help patients cope, the resources are generally for Health Professionals and provide little education for patients – Thankfully Australia, Great Britain (NHS) have some great resources. Sad that Canada does not have these – I highly recommend patients search the web around the world to find resources to cope in the long waitlists.

  20. Terry Robertson

    My son now 30 has suffered from chronic knee pain since he was 8 he has received very little help and less concern. After two surgeries on his knees that were unsuccessful he ended up since 2007 having been committed to Homewood in Guelph on three different occasions. And besides having chronic pain he is also is fighting a mental health disorder. Now we have been informed that a new study from McMaster indicates that they should reduce his medicine. I feel totally betrayed by the medical community and especially by our family doctor who has been his doctor since he was 5. I believe this new anti pain relief mentality will drive my son to a point where he feels his life is not worth living. I am sure the health community when he loses his battle for life will point to his mental health issue. Make no mistake he will lose to pain and the lack of relief then I guess their goal will have been met he won’t be in pain anymore. I sure there is no one at the end IOC this who cares or will help my son just want it stated somewhere that my son is being so stripped of any quality of life. He has done everything asked of him. He refuses to self medicate and has never used alcohol or illegal drugs to try self medicate yet he is treated like an addict or criminal. We are a low to middle class family and I believe we are lab rats to the new research grants if I had managed to move my family into higher social or economic standing in society he would of received better faster and best most effective care available. I am positive doctors lawyers and other higher levels of society’s family’s are treated like annoy waste product. I am thankful for a place to vent even if at the other end an erase button is pushed or a I give someone a good laugh.

  21. Terry Robertson

    My son has suffered from chronic pain since he was a child and now at 30 doctor is trying to remove all pain medication. I fear his quality of life will be lessened to the point he will see no reason to continue. Where can I turn for help a family doctor who quotes current beliefs is not an answer. I am terrified I will lose my son to pain. He has never self medicated in any way. I need help.

    • Scott Farraway

      Brenda. My wife is in the same situation. We have to get together and fight this! It is criminal! See our Facebook page Chronic Pain Treatment Advocates.

    • Scott Farraway

      Terry my wife is in the same position. See our Facebook page Chronic Pain Treatment Advocates. We’re trying to bring people together.

  22. Brenda Lee McIntyre

    If anyone comes up with how to get a class action suit against the Government and the College of Physicians and Surgeons. I have been trying to find a Lawyer but to no Avail. I swear to God that the Lawyers and Doctor’s are so afraid of having their Practices being taken away they are afraid of making waves. The Doctor’s in Hamilton had a clipping in the paper that they should leave patients that have been on Narcotics most of their lives not to reduce their medications at all because they may end up putting patients at risk for even more Health problems. The Doctor that I did have told me that I could never come off narcotics. I have been on Pain Meds for 43 Years. I have been reduced twice already and can barely function.

  23. Scott Farraway

    They have taken away the very thing that has kept some people alive without replacing it with anything. People with severe chronic pain need medications to survive and get out of bed. Without them pain reigns and life becomes unbearable.

  24. Rita Bailey

    PURE BS & I hope you & ALL of your colleges have to endure PAIN !!! I certainly wouldn’t take it if I wasn’t living this kind of life !!! Try getting up & your back CAN’T hold you up… try going to the bathroom & getting up… try to lay down & rest but the stabbing won’t stop… 15 plus years… just a freaking bunch of idiots!!! Entirely no quality

  25. Rita Bailey

    Picture yourself in a car accident & the ER dr tells you… sorry we can’t give you anything for pain !!! Now your gonna have surgery & your dr says SORRY we can’t put you under & absolutely nothing for pain…how does that feel !!!

  26. Laura

    I have had chronic pain since 2005 first I was put on oxycocets ect, but my system process them to fast so I went on Metadol which is Methadone for pain. Works great no side effects. But a pain clinic doctor started me and now wants my family GP to carry on. But he doesn’t want that so since then we have been lowering my doses and trying to find a new pain clinic closer to Trenton ON where I live so I don’t have to sit in a car for 5 hours sometimes longer on 401 W for my visits. My pain is getting worst again and starting to lose my daily activites again. We need more family doctors to have access to Methadone. Note I tried going to a Methadone clinic but that was so de-grading. ( Laura)

  27. Painsense

    Yes, why not? It totally depends on the doctors and their treatments.
    On doing a lots of research I found PainSense one of the best Service provider to patients with Chronic Pain. Radiology and clinical expertise ensure that the right procedure is performed for the right patient.

  28. Karen

    Physicians don’t care about people in pain and/or people who can’t sleep at night and/or people who have suffered loss because of poor health. They care about money, status, knowledge, power, and doing as little work as possible in their pursuit of money, status, knowledge, power. Take advantage of less fortunate people to get ahead? Yes please!

  29. NoPain

    There are a lot of successful treatment options you can receive from physiotherapy and chiropractors to treat pain. Chronic pain is very complex and there are psychosocial components that require further exploration. I think there is a greater role for PT who are underutilized in pain management. The main benefit being that your PT will spend more than 5 minutes with you and will take a comprehensive look at your posture, muscle balance, fascial trigger points, etc. Based on my lived experience as a patient in the OHIP system and as an employee of the public health care system, I really don’t know how most doctors can tackle this issue with their lack of time and caseload constraints. Greater advocay is needed for PT, as well as inclusion of PT services in OHIP covered areas such as pain management clinics. Ideally a greater number of well trained MDs with minimum 20-30minute appointment slots would be needed, but that’s an issue to tackle with the government.

  30. Hannah

    I have been living with nerve pain in my right arm for over 10 years now. Lack of resources, funds, and health insurance has prevented me from getting it fixed. I was a blackjack dealer for 17 yrs. Work comp denied because it wasn’t accute. After losing everything and pushing all friends and family away, I am at my end. All tests come back normal. I am trying thoratic outlet now. My doc does not seem hopeful. He has they lack the equipment and experience in Las Cruces to evaluate this properly. He said Dallas TX is the closest place to diagnose my condition. I have been misdiagnosed incorrectly for years. Nerve pain meds, narcotics, alcohol, yoga exercise, acupuncture, stretches, rest, heat, cold, tinge units….you name it. I have stuck bandaids on my symptoms for years. It’s not getting better….the mental anxiety of these sensations over the years has caused my blood pressure to rise to stroke levels. I am going insane. I can’t think, function, work, or even wash dishes. Typing this letter is causing major irritation. It crawls, tingles, numbs, weakens, runs, pins, needles, constantly. It’s consumes my every thought. I constantly think of ramming a rod down into my shoulder and going to the ER and saying “now you have to fix it.” I am losing hope. The thought of one more day feeling this sensation is unbearable.

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