Three years ago, Katie (name and some details changed to protect her identity) was in a car accident on a rural road two hours outside of an urban centre. Her ankle was crushed in the accident, and after a delay of several hours due to weather, she was air-lifted to the nearest trauma hospital to undergo emergency surgery.
While the emergency surgery saved Katie’s foot, she was left in agonizing pain from the bones in her ankle grinding on each other. The pain was so extreme that she could not walk. She was unable to work, and barely able to care for her three young children.
For the next two years, Katie sat on various waiting lists, first to see a pain doctor and then to see a specialist in foot and ankle surgery. She was prescribed powerful opioids to treat her pain, but they were not effective – she remained unable to walk.
After an entire year of waiting just to see the foot and ankle surgeon, Katie was placed on another wait list to have her ankle fused. She had her surgery six months later.
Katie’s pain is now almost completely gone, and she is able to walk for the first time in nearly three years. But while this surgery gave Katie her life back, she spent nearly two years on various waiting lists before finally getting the operation. What frustrates Katie and her surgeon is that if she had needed surgery for her hip or knee instead of her foot, she might have had to wait only half the time.
Five priority areas for wait time reductions
In 2004, Canadian provinces agreed to a 10-Year Plan to Strengthen Health Care, with a major focus on wait times. The plan identified five priority areas for wait time reductions: cancer care, cardiac care, diagnostic imaging, hip and knee joint replacement and cataract surgery.
The plan set benchmarks for wait times in these areas, and involved a substantial amount of new funding – $1.7 billion in Ontario – to increase the volume of these procedures. It also mandated monitoring and annual public reporting of wait times in these five areas.
These efforts resulted in short-term improvements in wait times in the five priority areas in most provinces. However, while the National Wait Times Initiative was successful in increasing short-term volume of surgeries in priority areas, the volume of surgeries in non-priority areas stayed largely stable, with a small but steady decline in recent years.
The trouble for patients is that while the five priority areas are clearly very important, many non-priority surgeries are just as crucial to quality of life. In orthopedics (bone and joint surgery), for example, evidence shows the mental and physical disability caused by end-stage degenerative disease in the ankle is at least as severe as that caused by end-stage disease in the hip. Yet hip replacement surgery is a priority, while ankle replacement surgery is not.
Wait times for non-priority surgeries
In many cases, wait times for surgeries falling outside of priority areas lag well behind those identified as priorities.
In Ontario, 90% of patients receive foot surgery within 323 days, compared to 218 days for knee replacement and 183 days for hip replacement.
In Alberta, waits for foot surgery are more modest, but waits for another non-priority area – spinal surgery – are much longer: 90% of Albertan patients receive spinal surgery within 329 days, compared to 273 days for both knee and hip replacement.
But these measures are only half the story – they show only the wait from when surgery is scheduled to when it is performed. The earlier wait – from when patients are referred by their family doctor to when they actually see a surgeon – is not currently monitored in either Alberta or Ontario.
Tim Daniels, a foot and ankle surgeon at St. Michael’s Hospital, says the wait time to see foot and ankle specialists is much longer than to see most other orthopedic surgeons. He says many new patients must wait more than a year before he can see them, and the only reason his wait times aren’t longer is that he turns down roughly half of all new patients that are referred to him.
Narrow focus on waits had unintended consequences
“Foot and ankle fell off the table when wait times focused on hips and knees,” Alan Hudson, who spearheaded Ontario’s Wait Times Strategy until 2009, writes in an email. “Classic example of down side of target and financial incentive to do other things,” he says of targeted funding for hospitals to increase the number of knee and hip replacements, but not other kinds of orthopedic surgery.
Chris Simpson, Chair of the Wait Time Alliance, agrees. “The focus on the big five priority areas made for some very nice report cards for governments, but while we were making progress in those areas, everything else got left behind,” he argues.
However, Hudson notes that some innovations born of the Wait Times Strategy should be leveraged to improve wait times across the system. In particular, he points to the centralized system for hip and knee replacements used in the Toronto Central LHIN, where patients are assessed at a centralized facility by advance practice physiotherapists and nurses. These assessors determine whether a patient is a good candidate for surgery.
This system cuts down on wait times, because it frees up surgeons’ time by not having to see patients who are not good candidates for surgery. The centralized system also gives patients the option to either pick a specific surgeon or the first available surgeon, which further reduces overall wait times. (Patients report a high level of satisfaction with this system.)
Daniels believes a system like this could be of enormous benefit for many surgical procedures that were not included under the five priority areas.
Connecting supply with demand
While efficiency gains can improve wait times somewhat, a more fundamental issue in non-priority areas is that their funding is not determined by population need. In other words, there is limited connection between supply and demand.
Historically, most Canadian hospitals have been funded through global budgets; stable funding arrangements determined by historical spending patterns, inflation and one-off negotiations between hospital executives and government. Under the global budget system, hospital managers have been largely free to allocate those funds according to their own priorities. This can lead to service gaps, both from lack of coordination between hospitals, as well as a tendency in some institutions to prioritize surgeries that cost less, says Jim Waddell, an orthopedic surgeon at St. Michaels Hospital.
This began to change when the Wait Times Strategy introduced targeted payments for hip and knee replacements. Where non-priority surgeries still had to be paid for out of a hospitals’ global budget, some hip and knee replacements were paid for individually with separate funds. This encouraged hospitals to devote more operating room time to hip and knees.
Daniels believes the strength of targeted funding was that it tied supply (surgical time) to demand (the large unmet need for hip and knee replacement surgery). He thinks a similar mechanism could be put in place for more surgical services, so that hospitals have a financial incentive – or at least no disincentive – to provide the services their communities need (services with very long wait lists).
Daniels is aware that in the current fiscal climate, there is unlikely to be new money available for targeted funding, but he is hopeful that Ontario’s ongoing restructuring of hospital financing – especially the move towards Quality Based Procedures – will provide a cost-neutral mechanism for better connecting supply with demand.
Ontario’s move to Quality Based Procedures may reduce wait times differences
Over the next three years, Ontario’s Ministry of Health and Long Term Care is shifting to a model where 40% of hospitals’ funding will come from Quality Based Procedures (QBPs). QBPs are a type of activity based funding – where hospitals are paid for the specific services they provide, rather than having to pay for everything under a single global budget.
While the chief purpose of QBPs is to improve quality through increased standardization, Waddell believes they could be the key to reducing the large discrepancies in wait times. If all orthopedic surgeries were funded through QBPs, hospitals would no longer be incentivized to prioritize surgeries with relatively short waits, simply because they cost less or had special funding. Waddell thinks this would free hospitals to prioritize surgery services based on patient needs, rather than cost.
However, so far knee and hip replacements are the only orthopedic surgeries to have been designated as QBPs. Until other areas of orthopedics are also brought under this funding model, the large disparities between wait times will likely continue, with some patients waiting much longer than others for no reason other than having the bad luck of needing surgery in the wrong part of the body.
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I live in a part of the province that has one foot & ankle Surgeon to service the whole province. After fighting with my family Doctor for a referral, I finally got into see him & had a double ankle fusion & an arch reconstruction. The problem is that he didn’t fix the problem that caused all these other problems which is severe over pronation. I’m now worse off than what I was as my ankle goes one way & my foot goes another. This has put severe stress on my ankle joints & the inside of my knee. My other foot is just as severe as this one. I’m almost to the point of being wheelchair bound. He says there’s nothing more he can do for me but I know that there is a procedure that would fix this severe over pronation & give me my life back. The prospect of never being able to walk again & living my life in a wheelchair has pretty well set me over the edge. We shouldn’t have to beg for help. I’m now going to ask for a referral to see Dr. Daniels in Toronto but I know the wait to get into see him is long. Time is not on my side. I’m to the point where it’s a struggle just to get out of bed the pain is so bad in my ankles & knees. If only I could afford to go to the US to get the help I need.
Barb, Did you end up getting referral to Dr Daniels? and if so how long from referral to appointment? I recently had Back surgery at St Mikes which did fix Sciatic pain but it appears pain and numbness in right foot and toes is probably due to a bunion as opposed to Herniated disk which was fixed. My Neurosurgeon retired after my surgery so I now have to start all over with referral process. Were you able to get relief from further surgery ( I hope)?
I waited 5 years to have my ankle fusion done, three years on the surgical wait list. In the while waiting to have my surgery, other orthopedic issues arose due to my inability to walk with my left foot. Problems with my other foot, knees, hip, pelvis and spine. Not all of the this could have been avoided, due to other medical issues. But surly, some of the pain and orthopedic issues would have been less. I will never know. The fusion, has not resolved the pain in my left foot/ankle.
Hi Belinda, I know it’s been awhile since your post but I’m curious to know how you’re doing? I also had an ankle fusion done which did not help me in the least. He didn’t fix the problem that caused the ankle arthritis in the first place which was severe over pronation. Did you find any other solutions?
I recall during the early days of the wait time strategy indicating to Dr. Allan Hudson at a meeting the obvious downstream impact that his five priority areas would ultimately have. He told me and the group that the implementation of the wait time strategy would not impact on existing wait times for non priority surgery. As my younger children say, “well duh!” Non priority surgeries including shoulders and bunions would naturally fall out of favour as they have.
As a gynaecologist, women with endometriosis pain are not prioritized in the existing scheme but their reduction in quality of life scores from the University of Oxford data are equivalent or worse than many orthopaedic problems, worse than inflammatory bowel disease and a number of other disorders but are not even on the priority radar.
%featured%All diseases requiring surgery are important not just those determined by politicians for political reasons. Why were children’s surgical disorders left off the table originally? Women’s health issues?%featured%
The only fair solution is quality and evidenced based surgical funding that is activity based funded by the MOHLTC.
Priority has been given to orthopedic, cardiovascular and cataract procedures over others because the major voting contingent is the geriatric crowd. Make them happy, and you win an election.
Young women with endometriosis don’t exist in large enough numbers to make a dent in an election, and children can’t vote.
Blame this on government restrictions preventing physicians from opening their own surgical centres.
The multitude of unemployed orthopedic surgeons would love to be able to fix your joints if they had operating rooms to work in.
Blame the government.
I do blame the government. In trying to stop people complaining about the wait for hips and knees they have left the rest of us to wait unreasonable lengths of time.
I have been waiting over 4 years for reconstructive surgery on my foot due to RA. When that is done, the other one will need correction. In the meantime, my hips are starting to suffer from my bad gait and my foot spasms painfully in the night if I have been active in the day.
I am a proud Canadian and I believe in our egalitarian values in regard to health care but, I would gladly pay to have my foot repaired and am considering the same south of the border.
I shouldn’t have to.
Hi Joanne, I know it’s been awhile since your post but I’m curious to know if you went south of the border to have your surgery? I’m also investigating that option but I hear it’s quite costly.
Why dont we pegition the government,make it an election issue,senior power would give great impetus to tbis as they vote and need orthopedic help largely.
Instead of blame lets attack.
It is baffling to me that no one picked up on the fact that prioritizing hip and knee replacement surgery in 2004 would result in longer wait times for other so called elective surgery. I truly wish we could come up with another term besides elective as I consider the ability to walk pretty important in the grand scheme of things. One elects to take a vacation, having a major surgical procedure to ensure continued mobility is never something a person does with serious consideration. Orthopedic surgeons who specialize in feet, as well as shoulders and elbows are rare across this country. By not giving them adequate OR time we are doing a disservice to us all, most importantly to patients like me with long term Rheumatoid Arthritis who has seen the inside of an OR far too many times but without these surgeries my life wouldn’t be worth living.
Activity based funding is critical to the improvement of our health care system in the acute care sector. That being said, the case costing MUST reflect real costs plus a small margin to promote efficient care in organizations. If a procedure is not cost effective the risk is that some hospitals may steer away from important procedures or activities necessary to proper patient care. There may be limits to efficiencies in some organizations.
Case costing MUST reflect complexities; otherwise some hospitals may “refer” complex cases to tertiary centres who may not be able to afford to provide such care.
Lastly, activity based funding should include ALL activities in the acute care setting. Hopefully this will eliminate the have and have not procedures and specialties the selection of which were politically not medically derived.
I have had ligament reconstruction in both ankles in my 20’s in my early 30’a new problems started to surface. I waited 4 years for an appointment with only 1 of 2 doctors in Toronto doing ankle replacements. I waited 4+ hrs past my appointment time. The surgeon walked in looked at my ankles & said “you have a problem but are 10 yrs to early to treat it” then left. Had I been better prepared, rather then stunned I would have said ‘should I make that appointment today’.
Had I been better prepared, rather then stunned I would have said ‘should I make that appointment today’.
good comment :)