Lived Experience

517 articles:
by Gabriela Lima de Melo Ghisi

Adherence starts with understanding: Why health literacy is a system responsibility

On World Adherence Day, the message should be simple but transformative: before we ask patients to follow treatment, we must ensure they truly understand it.

by Margot Burnell

Co-payments ‘a step backward’ for refugees and the health-care system

It’s imperative we protect access to health care for refugees and asylum claimants. There is no compromise when it comes to equitable health care.

by Laura Syron

Reclaiming the joy of cooking for people living with chronic conditions

The millions of Canadians living with diabetes deserve better than a lifetime of restriction and shame.

by Maddi Dellplain

Bill to criminalize forced sterilization sparks debate over reproductive justice and medical practice

Bill S-228, which would criminalize forced and coerced sterilization with an up to 14-year prison sentence, is on its way to becoming law. But is it a step in the right direction? Experts weigh in.

by Gabrielle Pagé

The hidden cost of dismissal: How we amplify chronic pain in clinical settings

Chronic pain affects more than one in five Canadians. But not all pain is shaped by our bones, muscles and systems. It also is shaped by context.

by Biba Tinga

The issue no one wants to address about blood donation and Black Canadians

The issue is not whether Black communities care enough to donate. The issue is whether Canada’s blood system is structured in a way that makes equitable participation possible.

by Maria Osorio Sarah Aterman

Cognitive Stimulation Therapy: A human-centred, cost-effective approach to dementia care

Health systems across Canada need to devote more time and resources to implementing non-pharmacological programs such as CST to provide comprehensive dementia care in an equitable way.

by Saachi Jain

Schooling or suicide: The ethical responsibility of educational institutions

Students are dying silently in the places meant to shape their futures. Schools cannot prevent every tragedy, but they also cannot ignore the role they play.

by Lori Dunne

The cost of caring: Social worker well-being and fair compensation

As social workers we are often expected to put our needs last, while accepting an income that fails to reflect the true value of our work. We need to change the social work discourse and change the landscape in which we are expected to work.

by Colleen Kelly

Kevin’s story: My journey with my brother, dementia and Down Syndrome

Across the country, we talk about dementia more than we used to, but too often, conversations remain fragmented - and people with disabilities are rarely at the centre of planning.

by Aidan Gunter

Why the debate over physician involvement in pre-hospital care in B.C. needs a reset

"I work as an advanced care paramedic in British Columbia. I’m proud of our work, but I’m increasingly concerned that debate over physician involvement in pre-hospital care has lost sight of its primary goal: improving patient outcomes."

by Margot Burnell

Sick notes are slowly being banned but much more is needed to reduce administrative burden

Doctors across Canada agree: the crushing paperwork in medicine is unsustainable. Together, we can create a better system that truly supports both patients and the physicians who serve them.

by Anu Radha Verma

‘Dangerous outcomes’: The limitations of BMI as a diagnostic tool

Researchers, clinicians and advocates have been raising concerns about the BMI, saying it is not a comprehensive indicator of health and using it can have disastrous results, especially for racialized populations.

by Sanjeev Sockalingam

Don’t give up on your health. Give up on the old playbook

As January recedes in the rearview mirror, so have most New Year’s resolutions to lose weight, eat better or get fit. But when success is only defined by a number on the scale, disappointment is almost inevitable.

by Robert W. Marotta

The euphemism economy: How Ontario health care learned to stop worrying and love the hallway

There’s a difference between softening language to ease emotional pain and softening language to hide systemic failure. One is compassion. The other is camouflage.

by Mohammad Karamouzian

The deafening silence: A diaspora’s grief in the age of internet blackouts

For the Iranian diaspora, this is not a debate about policy reform; it's about survival. We need our governments and institutions to do more.

by Danyaal Raza Sheryl Spithoff Brigid Goulem Gaibrie Stephen

The quiet commercialization of primary care records

An emerging model is quietly turning Canadian patient medical records, and patients themselves, into lucrative commercial assets – often without patients' explicit knowledge or consent.

by Gemma Boothroyd

‘It made everything worse’: Nurses say WorkSafeBC delays recovery after violent incidents

Nurses reporting workplace violence say they face long waits, complex rules and rigid treatment pathways from WorkSafeBC.

by Janice E. Parente

Our research ethics boards aren’t the problem – the system wasn’t built to protect participants

The bodies responsible for the ethical review of research and ensuring that it safeguards the individuals in it – operate with no national standards, no oversight and no accreditation at all.

by Keerthana Pasumarthi

Where two worlds meet: The importance of cultural sensitivity in medicine

"I felt not like a physician but more like an interpreter – not of language, but of the space between two worlds: Western medicine and the cultural practices that shaped Lakshmi and Prakash’s life."

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