ME/CFS is a misunderstood complex chronic illness affecting more than 600,000 Canadians. For decades ME/CFS patients have been left without proper medical support. But now, with the wave of new post-viral illnesses from the COVID-19 pandemic, ME/CFS patients might finally see some answers.
What trade-offs are acceptable to you? Do you currently have a family doctor or nurse practitioner? How important is it that every person living in Canada has a relationship with a family doctor? These are some of the questions we ask in the OurCare/NosSoins nation-wide survey.
Dr. Tara Kiran and a team of collaborators are launching OurCare, a three-phase research project that aims to provide much-needed answers to Canada’s primary care woes. The project kicks off with a national survey of patients' experience.
Learning about a patient’s hopes can create an opportunity for both special intervention and improve goals of care conversations and assist doctors in crafting a care plan that will optimize the chances of these dreams coming true. The Oneday Dreams charity offers the hope for better quality of life to patients with terminal illness.
As a child with cystic fibrosis, I was hit with this adult issue of mortality – something no 5-year-old should be worrying about. When I was born in 1971, the median survival rate for women with CF was 20 years old. I’ve chased that median age of survival my whole life.
My illness was something that happened to me, but I was still under there. I had to come out from under that shadow to figure out who I wanted to be even if I was going to die in a few months.
My life changed significantly when I realized I was in control. I’ve decided I’m going to retire earlier than originally planned so I can scratch things off my bucket list now that it is deeper than before. I know if my cancer returns, I’m going to have a big blowout funeral party and obviously attend it myself.
Spiritual care can be a powerful therapeutic intervention. However, 80 per cent of patients reported that physicians never or rarely discuss spiritual or religious issues with them. But the role of spiritual health does not have to fall on physicians alone.
I have ADHD, but it took nearly my whole life to receive a proper diagnosis. Unfortunately, I am not alone – females with this condition often go either undiagnosed or misdiagnosed, since ADHD diagnostic criteria are male-oriented.
When patients have strange, unidentified illnesses, physicians often focus more on finding a diagnosis than managing symptoms. When a close family member struggled with such an illness, I saw the importance of addressing patient suffering earlier on.
People joke that they don't like going to the dentist, but for some, a trip to the dentist can actually trigger past traumas. The trauma-informed dentistry movement is trying to make dentists' offices places where vulnerable patients feel safe.
Nurses hold the health-care system together, even as many are suffering from burnout and leaving the profession. In this photo-essay, nurses speak about the little things they carry with them to stay motivated and connect with patients and colleagues.
When hospitals harm patients, patient-relations departments provide insincere apologies and resort to other tactics to shield hospitals from accountability. I experienced this while coping with medical errors my late dad suffered as a cancer patient.
We're only beginning to understand the "secondary losses" of the pandemic. The immediate future of health care will likely be defined by the appearance of illnesses that flourished among the forgotten, patients who were inadvertently neglected.
As a 19-year-old with bipolar disorder, I waited eight hours in the ER for a doctor. My brain may not have been bleeding, but I felt like my brain was on fire. Here's what I learned about improving care for patients experiencing a mental health crisis.
Advance care planning takes for granted that any wishes about my care that I made in advance should guide the treatment I get when I'm incapacitated. But what if they actually shouldn't – because when incapacitated, I'm not the same person?
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