Patient experience

The quiet commercialization of primary care records

An emerging model is quietly turning Canadian patient medical records, and patients themselves, into lucrative commercial assets – often without patients' explicit knowledge or consent.

Our research ethics boards aren’t the problem – the system wasn’t built to protect participants

The bodies responsible for the ethical review of research and ensuring that it safeguards the individuals in it – operate with no national standards, no oversight and no accreditation at all.

Where two worlds meet: The importance of cultural sensitivity in medicine

"I felt not like a physician but more like an interpreter – not of language, but of the space between two worlds: Western medicine and the cultural practices that shaped Lakshmi and Prakash’s life."

‘When doctors stop talking, patients fall apart’

When care is fragmented, patients become the glue holding the system together. We carry test results from one office to another, retell our histories again and again, and hope that someone will connect the dots before something important is missed.

The accidental birth tourist: A North American pregnancy

When baby is old enough to know the full story, I cannot wait to share how life was up north, in a place known for its warmth as much as for its cold, that welcomed an American like me without a plan.

‘Things went horribly wrong’: Patient advocates spreading the word about dangers of Botox

Much of the conversation about Botox centres on whether it looks good or bad, or if getting it can be considered a “feminist” choice. Less attention has been given to the fact that research indicates that one in six patients who are injected with Botox experiences adverse effects from the procedure.

Meeting patients where they are: Why medical training must include social media literacy

Some medical schools are beginning to explore digital health communication, but comprehensive social media literacy training remains the exception rather than standard practice.

Queering the curriculum: Sexual orientation and gender identity in Canadian comprehensive sexuality education

Comprehensive sexual education plays a vital role in equipping young people with knowledge about their bodies, identities, rights and relationships. But access remains uneven across the country.

Fail-first drug rules defy logic, deny timely access for people with rare diseases

Despite the recent approval of targeted biologics that can significantly improve quality of life, Canadians living with Myasthenia Gravis continue to face unjust policy barriers.

A roadmap for change: Building the health workforce Canadians deserve

A well-planned, integrated workforce can deliver access, improved outcomes and support our health professionals. It’s time to put the future in motion.

Living with stage 4 lobular breast cancer: What I want you to know

Lobular breast cancer is different. Vigilance matters. And stage 4 does not erase the possibility of hope or joy.

AI and the mental health crisis: Can chatbots fill the gap?

Canadians are increasingly turning to AI chatbots, like ChatGPT, for mental health support. But is this type of technology truly up to the task?

Caregiver calls for action to tackle cancer’s financial toxicity

Everyone agrees lack of money shouldn’t be a barrier to life-saving cancer care. But when cancer metastasizes to bank accounts it can reduce the odds of survival.

Using ‘integration’ to silence culturally specific care

When culturally specific care is allowed to vanish under another name, we all lose a piece of the commons we rely on.

Ontario has a new way of measuring how hard family doctors work. What does it mean for doctors and their patients?

The new “Continuity of Care” measure included in the new agreement between the Ontario government and its doctors has good intentions but comes with severe penalties and without necessary checks and balances.

Beyond pink and teal: Patient advocacy is not a morality play

Patient advocacy at its best is not about purity. It’s about presence. It’s about showing up, with all our raw, unpolished language and stories, to demand dignity for people whose lives are already heavy with suffering.

Was my wife’s hospital care an anomaly or the new normal in Ontario?

I had hoped my wife would get timely and dignified care like I'd received in the past. She did not. Was her care an anomaly or is it the way of the future? I don't know but I sure as hell hope it is not the future.

Expanding access to disability supports: the case for impact investing

Thanks to limited access to interventions and income thresholds that fail to account for the cost of caregiving, families with children with neurodevelopmental disabilities are often left to pay out-of-pocket for services.

Black mistrust is logical and rational: What public health policymakers must learn from Black communities

Black communities are not hesitant just for the sake of it. They are hesitant because of memory. They need structural change built from trust, not just crisis.

Patient Perspectives: Telling our stories is critical to improving care

As a physician, nothing will tell you more than simply asking someone how their illness impacts their lives and listening closely to their answers.