Can healthcare do better for people with multiple chemical sensitivities?


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21 comments

  1. Arthur Leznoff MD. FRCP(C)

    The existing “Taskforce ” on MCS, fibromyalgia and chronic fatigue is flawed. The Canadian society of allergy &clinical Immunology has sent letters about this “taskforce” If a new panel will be considering MCS, I am willing to serve on the panel.I am considered (by orthodox,evidence based medicine) to be expert in “MCS”
    Arthur Leznoff MD, FRCP(C)

    • Sandra Proudfoot

      I have MCS. I saw Dr. Leznoff as a patient many years ago when I was trying to sort out the reasons or sources of why my body overreacted to chemical pollution. With all due respect, Dr. Leznoff is/was an allergist. MCS is not about allergies although we appear to have allergic reactions. It is about sensitivities towards chemicals and our reactions to them. An allergist is not the person to serve on a panel for MCS. It is not black and white, it is a very confusing medical issue which is not clearly understood by the medical profession because there is no one medical test which can define whether you have this or not. MCS is not black and white. But it is also not something an allergist would have something to contribute to and I would hope that someone with a background in chemistry might become involved in and how chemicals can and do affect the immune system of humans. S. Proudfoot, Ont., Canada

  2. Varda Burstyn

    I really welcome this article, and its encouragement of healthy debate on the broad but incredibly neglected issue of MCS. Many thanks to the authors.

    Unfortunately, the historic failure of allergy and immunology to understand and develop treatment modalities to assist patients with MCS has been a big part of the problem, especially here in Canada. Dr. Leznoff’s reference to ‘orthodox, evidence based medicine’ may have right with respect to ‘orthodoxy’ but not to ‘evidence based.’ That discussion will need a longer space than is available here.

    In the United States, a significant number of allergists have added more effective approaches to their practices by becoming expert in the field of environmental medicine, about which more can be learned from the American Academy of Environmental Medicine http://aaemonline.org/. Denial of real disorders and refusal to expand knowledge has left hundreds of thousands of Canadians and their families without help.

    To see the types of diagnostic and treatment modalities that are available south of the border, and that should be made available here, visit a clinic that has helped 40,000 patients over many years (including me, 9/11 first responders, Exxon Valdes and Deepwater Horizon victims and many others): http://ehcd.com/

    The same attitude of denial also sustains the general use (and the non-regulation) of many toxic ‘everyday chemicals’ that are harming everyone’s health in serious ways over time. There is a huge literature on this subject by now, but those not yet familiar with this reality can certainly get a good start by visiting http://www.healthyenvironmentforkids.ca/resources/EE-andCD-scoping-review.

    We need to develop strong public health standards for chemicals in daily use – from building materials to baby toys, from furniture to cosmetics – that protect everyone’s health. This will create a much safer environment for those with MCS too, reducing their disability by improving air quality and creating safe spaces for all. And we need to modernize the practice of medicine here, not retrench and look backwards.

    As far as CBT is concerned, MCS refers to symptoms – but not to cause or severity. In case of low toxicity, absence of pernicious infections and other biophysicial problems, some form of ‘amygdala retraining’ may be helpful. And it should be provided where it can help. But it cannot – and does not – resolve MCS when other important biophysical factors are part of the clinical picture. So it cannot responsibly be advanced as a cure for all, or even most, people with MCS.

  3. Varda Burstyn

    Just clicking on the links here and noticed that the research cited is out of date, unrepresentative and limited. Instead, check out

    Chronic, Complex Conditions: Academic and Clinical Perspectives, John Molot, MD, FRCFP, 2013. This document presents current thinking by physicians and researchers, and recommendations for clinical services.

    at http://recognitioninclusionandequity.org/resources/

  4. Tina

    All I can say is that I have FM and MCS and a handful of autoimmune syndromes. When you are disabled by a migraine like headache and can’t function with vomiting all you can do is curl up in a ball waiting in the ER for half a day for treatment, I know it isn’t in my head or can be cured with therapy. I work hard and succeed in spite of my disability and because it is invisible suffer stigma from others that think it is in my head or I am a malingerer. If either of those were true I wouldn’t have put myself through university 3 times.

  5. americanlamboard.com

    Lack of adequate coverage makes it difficult for people to get the health care they need and, when they do get care, burdens them with large medical bills. Current policy efforts focus on the provision of insurance coverage as the principal means of ensuring access to health care among the general population. Other factors, described below, may be equally important to removing barriers to access and utilization of services.

  6. julie mellum

    One cause of multiple chemical sensitivities is the liver’s losing its detoxifying function–and this is due to overexposure to scented products and wood smoke. Either chronic exposure or short term intense exposures are the culprits that can cause the immune system to malfunction.
    It is essential for public schools to restrict fragrance use, because chemical sensitivities, asthma and other environment-based disabilities such as autism are skyrocketing.
    See Facebook page, “Go Fragrance Free” for more information.

  7. HR Lightbown

    This article is highly biassed, error-filled and dated. I’m surprised that such supposedly skilled & experienced staff writers would stoop to such slapdash methods.

    1) When there’s an official government body in the story, you give the full official name — and its mandate. At the very least, a token quote from the Chair. But, here — the reader gets nothing. We see the word “panel” and, later, “taskforce” in the comments — clearly, none of the writers bothered to check. A rookie move.

    2) Some of the basic medical jargon is wrong. MCS is a condition — not “a disorder” which was used in this article, a term that is overused in the mental health field. The word “disorder” signals the subtext for the entire article: MCS patients are crazy. Why else would the ONLY treatment option discussed be anti-anxiety drugs? Not-so-subtle bias.

    3) With the focus on allergists and their narrow perspective, the bias becomes more obvious. MCS can have a constellation of symptons — NONE of which is uncontrolled sneezing or runny nose and eyes, the core signal for an allergic reaction. Uncontrolled coughing, yes; sneezing, no. Only in those patients who ALSO have conventional allergies. The S in MCS is for sensitivity, because it’s not allergy. Which begs the question, then, who decided that allergy would be the thrust of the article? Wrong-headed from the outset.

    4) More bias shows in the way the writers cherry-picked through current research to find a psychological “review” from 10 years ago. Biassed and out of date.

  8. TINA

    I have currently been having these symptoms and talked with my doctor about it. Along with what had always bothered me in the past and how my body reacted.
    It has become overwhelming now and has made it very difficult for me.
    I have to watch what triggers my symptoms and keep track of them now.
    Found out in all this. That my cousin has been battling with MCS.
    So here I am researching and looking for help with all this.
    This MCS is not fun at all!!!!!

  9. KSpencer

    There are chemicals in our water that are worsening the symptoms of MCS, and first among them is fluoride. Fluoride also causes or worsens the symptoms of arthritis, Crohn’s disease, fibromyalgia, eczema, etc. yet because it gets into our food through both water and fluoridated pesticides, not to mention dental products and medicines, essentially every American consumes it daily…… See http://www.greenmedinfo.com/blog/science-and-alternative-facts-about-fluoridation-false-dilemmas-and-fake-news

  10. Sharon Nordick

    I suffer from MCS in Saskatchewan and work for the Health Region. I cannot find trained medical personnel to help me. I am once again jumping through hoops to try to stay employed with the Health Region. WCB and Disability insist on medical but without a doctor who understands MCS it is a constant cyclical problem.

  11. Monique Hebert

    OMG please help me! I’m suffering so much because I am multiple chemical sensitive with severe fibromyalgia and it feels like I’m being poisoned! Help!

  12. Ian Hodgson PhD

    Genetic studies of people with MCS show key SNPs involved. They are not specific to the condition but any intelligent physician can see from these that this person must be physiologically unwell. To think that the illness is psychogenic is malpractice or at very least not evidence based medicine. Medicine has developed a very very bad habit of psychologizing when clear singular markers are not available. It is iatrogenic to label such cases psychogenic. The damage done by this inexcusable act must be avoided but habits, medical habits are indeed strong and hard to break.

  13. Douglas Burns

    In May 2017 I lost for the fifth and final time to the Workers’ Compensation Board. It went on for eight years before the Tribunal (one person) decided against my claim for compensation. I was told by the Workers Advisory Lawyer that neither WCB or the Tribunal don’t recognize MCS. I was a janitor for 25 years and I became very sensitive to the cleaning products that I was using at my work. In 2005 I was diagnosed with MCS at the ICCS in Fall River in Nova Scotia. I had to leave my job in 2009 due to this illness. When it comes right down to the it, a person loses their income, medical coverage, family and more importantly their health. MCS makes it hard to live because you have to be aware of your surroundings all the time. Thank you for all you do.

  14. K Crispin.

    Yes MCS (multiple Chemical sensitivities) is real!!!!!!

    I was working in a unventilated Toronto building (still being finished) as a office building, containing many chemicals that were spread around the air being sprayed onto walls & floors, and after six months I contracted a myriad of symptoms that as a formerly very healthy man previously, never ever presented before in my life.

    That was in 1992, and now I still have these long time symptoms of MCS!!!!!

    Even though I carefully remain away from chemicals now, – so the immune system was found in elaborate US testing underwent a major damaging change, that my immune system now attacks my body and nervous system every time a brief exposure to perfumes, and other chemicals occurs.

    Even now Germany and Russia also recognise MCS.

    Sadly most of the Doctors never learned of the toxicity of chemicals during medical training, so we all suffer as Dr’s just throw their towel in when we all ask for help.
    The very best you can do is go to a Toxicologist ( I went to US) and get a tissue sample examined for a chemical toxicity panel test as the chemicals stay in adipose tissue (fat) for many years, as sadly again the chemicals disappear from the blood test they frequently do today inside two weeks, and you can’t prove your poisoning with a blood test.

    Only with a chemical toxicity panel test on your tissue will confirm your health effects & damage is from chemical poisoning.

    I have a file of 40 doctors and 120 reports from those specialists in USA,Canada, and other countries, all proving my chemical poisoning and nervous system and Immune system damages from the exposures that I was recognised at (WCB) – WCAT case after a very long seven year case in 1998.

    Now it is 2017 and I am still a sufferer of true extreme chemical allergies mostly called MCS (multiple Chemical Sensitivities) or ( Environmental illness (EI).

    My life has been ruined by this long lasting illness, that is also called Painters syndrome, or gulf war syndrome, or chemical poisoning.

    Remember this saying, a chemical researcher in Florida once told me to always use;

    “Dont smell it if doesn’t smell like fresh braked bread or roses, as it is going to be a poison to you.”
    I would be happy to share my case with a study case or with anyone who is genuinely interested to prove this disease actually is real.

    MCS sufferer for life.

  15. Sandra Proudfoot

    Multiple Chemical Sensitivities is real. It is not a figment of sufferer’s imagination. That said, because the cause is not understood medically, because reactions appear to be of a psychosomatic nature, many people who find themselves suffering to whatever degree from this disorder, are easily dismissed by the medical profession. I use the word disorder, because in attending the first health conference in Ottawa attended by physicians, Dr. Leznoff, allergist, environmental doctors, Dr. Josef Crop, those involved in the periphery of this unusual disorder, what to call ‘it’ was a focus of the conference. Should it be called a disease or a disorder. I refer to it as a disorder because the body and mind become disordered when it is reacting to chemical exposures. One might consider researching the work of Helke Ferrie, who has done considerable writing on this disorder. I worked with textiles for years, cotton/polyester cloth to be specific. Teaching quilting for ten years, I stood above a hot steam iron pressing this type of cloth. Several years into teaching three classes a week, for ten months of the year, I found myself trembling or shaking by the end of my classes. My inclination was to walk in the fresh air after my classes, which seemed to alleviate the trembling. I gradually began to have reactions to drugs, to barium swallowed for digestive issues, which were more of an anaphylactic in nature. In 1985, under an anaesthetic for emergency surgery, my body went into a serious reaction, my blood pressure and heart rate increased to over two hundred. Placed in intensive care, beta blockers were used and helped me stabilize but from that moment onward, I suffered from what I eventually came to understand was MCS. It is real, it is not a figment of the sufferers imagination, it is a long and discouraging road to a diagnosis and the inference that it is all in the sufferers head is both right and wrong. Simply put, to me, my exposures affect the oxygen levels in my body, when this is compromised, I have brain fog, I have muscular reactions, my heart rate can increase. My reaction is to get away from whatever appears to cause this and into fresh air. I have moved from Toronto the countryside north of Toronto, my reaction to petrochemicals is automatic. Polyester fibres are made from petroleum products. Inhaling the chemicals from textiles or cloth, does affect the respiratory systems of those exposed. Cloth is one big chemical bath from beginning to end. Women work mostly with cloth, although some men do as well, but it is the women, who in seeing doctors about this mysterious disorder who are often told, it’s all in your head. Well, to a degree it is, the oxygen levels are affected making thought processes disordered. In the end, it’s better not to discuss this disorder other than to say, I’m reactive to chemicals, I’m reactive to medical intervention, I react directly to adrenalin and then just keep quiet. I’m tired of being looked upon as neurotic. All I will say to doctors is, if you don’t understand this disorder, admit it. I understand that. I don’t understand why it is but I understand the nature of it.
    Sandra Proudfoot

    • Dave Mcivor

      Hello Sandra
      I read your story with great interest as I have been fighting mcs for almost 20 years and it seems each time I think I am recovering a small exposure sets me back and now after a heart attack and stent procedure it seems the mcs has taken over
      The things like sense of smell and constant dizziness from exposures have doubled and I worry that they are becoming quite chronic
      I was diagnosed at women’s college environmental clinic but our health system only allows 3 visits !!! What can they do for such a complex disease in 3 visits??

      Best of luck Dave

      • Shan Russell

        I personally am not interested in trying to convince anyone that Environmental Sensitives is a “real” disability. Any professional person who is not capable of finding this information for themselves would cause me to seriously wonder how capable they are as well as how seriously they really care about this information.
        Do you know how to google?
        The urls to the following perspectives are from the Human Rights Commission and I would have thought that logic and common sense would dictate that as one of the first places to look also.

        The Medical Perspective on Environmental Sensitivities
        About the Publication
        Are you an employer or service provider? Do you understand, from a medical perspective, why you need to accommodate individuals with environmental sensitivities? Do you know what policies or guidelines you should implement to ensure your environment is safe for all? This report summarizes scientific information about environmental sensitivities and addresses issues such as recognition by medical authorities, education and training, impact of environmental sensitivities in the workplace, and guidelines for accommodation
        http://www.chrc-ccdp.gc.ca/eng/content/medical-perspective-environmental-sensitivities

        Accommodation for Environmental Sensitivities: Legal Perspective
        About the Publication
        Are you an employer or service provider? Do you know your legal obligations to accommodate individuals with environmental sensitivities? What are the best methods to resolve conflicts about accommodating environmental sensitivities? This report examines these issues from both a legal and a human rights perspective. It provides seven recommendations to help you deal with environmental sensitivities
        http://www.chrc-ccdp.gc.ca/eng/content/accommodation-environmental-sensitivities-legal-perspective

        As for those who think they have Multiple Chemical Sensitivities, you can email me for all sorts of information at surpriseshan2@aol.com . Information on treatments and alternative products that are just as effective but without chemicals, as well as what MCS Is and is not. However I suggest that those who wrote this article do “due diligence”.

        Dave if you honestly need or want to know more about MCS, I suggest that you go to the Yahoo health groups and join one or more. Great sources of info — the info in this articles is badly out of date and incorrect.

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